UK Keratoconus Self-Help and Support Association

Tompkins of Northampton is the only one to let us know they offer these lenses, but of course there may be others. At this stage, I don't know whether any hospital departments apart from Moorfields plan to use them. I'll certainly let people know if we hear any more. As for your second question, tha...

Welcome back and thank you! And a good 2025 to all.

Thanks for raising this, as Moorfields doesn't seem to be communicating these changes to patients in any systematic way. I must say I share your concerns. The info in the link says PIFU is optional - I do hope that proves to be the case. And are all changes sudden? What about gradual changes which p...

Some of you will have read about the new CAIRS treatment in our Summer 2023 and Spring 2024 newsletters https://www.keratoconus-group.org.uk/index.php/newsletters/ similar to Intacs or Ferrara Rings, but using sterile corneal tissue. I don't know whether this is yet available on the NHS, but we have...

Hi Lesley and welcome back. So is this a regraft or the first time you'll be having a transplant? I've had cataracts removed from eyes that already had transplants. And there's a post about this just a few below this from Carmel. I don't remember seeing anyone on the forum who has had the two proced...

Hello Caz and welcome. I've edited your post to take out the name of the optician you went to. We do ask users of the forum not to criticise named health professionals. We usually get posts from people with KC who need help adjusting to scleral lenses, so it's quite novel to get two people who choos...

Many of you will have been following the progress of Dr Abass's research into specialist glasses that would improve the vision for people with KC or make the use of 'back-up' glasses for the times when you need a break from contact lenses more possible. The first stage of his research has now been p...

As in previous years, we've joined with the American KC Foundation (NKCF), Keratoconus Australia and Keratoconus Barbados in promoting a competition to mark World KC Day next month. You'll find details here https://www.keratoconus-group.org.uk/index.php/2024/10/11/world-keratoconus-day/ And while in...

Hi Carmel, Everyone's experience of vision with KC is different, and if you add in cataracts as well, it's hard to say what is 'normal'. Like you, I've had transplants in both eyes and a regraft in just one of them, and I've had cataracts removed from both eyes. Having talked to other KC people with...

Following on from the talk we had from Moorfields Principal Optometrist Aneel Suri, about innovations in contact lens design (you can watch the video here https://www.youtube.com/watch?v=tZ6703ue5ak&t=239s or read a summary of the talk in our Summer 2024 newsletter) there's news that these are a...