UK Keratoconus Self-Help and Support Association

The following document has been produced by BAME Vision. Although it mainly talks about glaucoma, it is equally important for anyone who is using regular drops for KC, such as steroid drops post graft or eye drops used after CXL. Eye Drops & Medication During Ramadan During the Holy month of Ram...

Hello and welcome to the forum. Corneal ring implants (Intacs or Ferrara Rings) have been around for quite a few years now, though how much they are used in the NHS seems to vary a lot from one hospital to another and between specialists. Intacs don't stop KC progressing so since corneal crosslinkin...

Hello Chezza and welcome. I've moved your post to the general discussion where more people will see it. If your KC isn't affecting your vision and you're within the legal requirements for driving, then declaring to DVLA isn't essential, though would do no harm (the most they'd do is ask you to read ...

Hi, I've copied your post to this forum, where more people are likely to see it. It's a difficult time, with so many 'routine' appointments having been cancelled and I guess hospitals vary a lot in how quickly they're able to catch up on the backlog when new referrals are also coming in all the time...

Just to add that if you can't get an early appt at QMC, there's an excellent optometrist in Nottingham who specialises in KC and is the principal optometrist at this practice https://brooksandwardman.co.uk/ He used to reply to posts on this forum giving us the benefit of his knowledge, and was recen...

You can now watch the video of the Sight and Sound presentation here.
https://www.keratoconus-group.org.uk/in ... echnology/

Some of you will have taken part in the genetic study of keratoconus at Moorfields, which began in a small way many years ago and expanded to become an international project. The results have just been published and you can read the press release here. https://www.moorfields.nhs.uk/news/moorfields-l...

Want to know how new technology can help with all those tasks you struggle with? Sign up for the free webinar by Sight and Sound Technology, designed specifically for people with KC. On Tuesday March 9th at 6.30pm - more details here. https://www.keratoconus-group.org.uk/index.php/2021/02/04/sight-a...

Hi Sal, We do have a list of optometrists who say they are happy to fit people with KC. https://www.keratoconus-group.org.uk/index.php/registered-optometrists/ The list was compiled some years ago, so some entries may be out of date. But there are two optometrists listed in Oxford that you could try...

This was the situation last September as reported by the forces consultant we asked for help. "We did meet and discuss (virtually) and have made recommendations to change the JMES. That will need to be approved by the relevant military occupational health committee but hopefully will be. It is ...