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by Anne Klepacz
Sun 18 Aug 2019 10:06 am
Forum: General Discussion Forum
Topic: KC and the UK Armed Forces
Replies: 1
Views: 20

Re: KC and the UK Armed Forces

Hello JWJ, If you look at this thread https://www.keratoconus-group.org.uk/forum/viewtopic.php?f=1&t=16278&p=75585&hilit=armed+forces#p75585 you'll see that this is something the KC Group has also been trying to do something about. But although the initial reaction was favourable, since ...
by Anne Klepacz
Sun 18 Aug 2019 9:54 am
Forum: General Discussion Forum
Topic: Routine stitch removal on transplanted eye gone wrong
Replies: 2
Views: 14

Re: Routine stitch removal on transplanted eye gone wrong

No, of course this is not normal and a horrible thing to happen. I do hope you have some better news tomorrow, but it sounds like you have every reason to take this further.
All the very best and let us know how you get on.
by Anne Klepacz
Wed 14 Aug 2019 2:52 pm
Forum: General Discussion Forum
Topic: Awaiting a corneal transplant
Replies: 2
Views: 52

Re: Awaiting a corneal transplant

Hello Gemma and welcome to the forum, I had corneal transplants in both eyes back in the 80s (2 years apart). After 28 years, the left eye needed a regraft which I had 5 years ago. Most people will need correction with contact lenses or sometimes glasses after a transplant and it's by no means an in...
by Anne Klepacz
Fri 09 Aug 2019 3:13 pm
Forum: General Discussion Forum
Topic: Genetic research into KC
Replies: 0
Views: 29

Genetic research into KC

Some of you will remember that the KC Group donated 4K to the Moorfields team, headed by Mr Stephen Tuft, researching the genetics of KC to enable them to do some additional analysis of the data. You may also have read the summary of the talk given by Professor Alison Hardcastle at our AGM earlier t...
by Anne Klepacz
Sat 13 Jul 2019 3:53 pm
Forum: General Discussion Forum
Topic: Financial Help
Replies: 2
Views: 91

Re: Financial Help

Hello AD1 and welcome, I'm afraid financial help with the cost of contact lenses is limited. Those on certain benefits can get free lenses and there is also some help for those on low income through a HC3 certificate. You'll find details here https://www.nhs.uk/using-the-nhs/help-with-health-costs/f...
by Anne Klepacz
Wed 10 Jul 2019 2:05 pm
Forum: General Discussion Forum
Topic: UK Armed Forces (officer); any hope?
Replies: 8
Views: 2058

Re: UK Armed Forces (officer); any hope?

Hi Borgmill, If it's many years since your diagnosis and you continue to have negligible symptoms, it certainly seems worth a try to see an ophthalmologist and get 'undiagnosed'. I'm sure it wouldn't be the first time that an initial diagnosis turned out to be wrong. I've no idea how likely you are ...
by Anne Klepacz
Sun 30 Jun 2019 12:56 pm
Forum: General Discussion Forum
Topic: Driving
Replies: 3
Views: 181

Re: Driving

I gave up driving in the dark for that very reason, because I no longer felt safe in those conditions. It's a very common symptom of KC. Contact lenses can reduce the effect, but often can't get rid of it altogether.
by Anne Klepacz
Sun 30 Jun 2019 12:52 pm
Forum: General Discussion Forum
Topic: Scleral lenses
Replies: 3
Views: 155

Re: Scleral lenses

Hi Eva, The obvious place is here https://www.hertfordoptometry.co.uk/ though it might not be the easiest of journeys for you from Berkshire. But it's where Ken Pullum, THE specialist in scleral lenses, works when he's not at Moorfields or Oxford. I guess you know that scleral lenses, because they'r...
by Anne Klepacz
Mon 24 Jun 2019 9:54 am
Forum: General Discussion Forum
Topic: Run in families
Replies: 2
Views: 147

Re: Run in families

There are some families with more than one family member with KC, but they are the minority. Most KC is 'random' with no one else in the family being affected. About 13% of cases involve other family members, though KC can skip generations and it takes several different genes to come together for KC...
by Anne Klepacz
Mon 24 Jun 2019 9:41 am
Forum: General Discussion Forum
Topic: Hypotony
Replies: 2
Views: 91

Re: Hypotony

In all the years of the forum, I can't remember anyone reporting their introcular pressure being too low after a graft. What does sometimes happen is that IOP rises after a graft because some people have that reaction to the steroid drops that we all have to use for a while after a graft. It's somet...

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