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by Anne Klepacz
Tue 08 Oct 2019 2:22 pm
Forum: Frequently asked Questions - and Answers
Topic: Am I qualified for a Cornea Transplant?
Replies: 9
Views: 4926

Re: Am I qualified for a Cornea Transplant?

Hi Nicole, You sound like an amazing lady to have coped with all of this. There's probably quite a few of us here on the forum who can't drive because our sight just isn't good enough. But of course, how much impact that has on our lives depends on lots of other things such as how good public transp...
by Anne Klepacz
Sun 22 Sep 2019 11:40 am
Forum: Frequently asked Questions - and Answers
Topic: What are the options for KC patients in the UK
Replies: 1
Views: 121

Re: What are the options for KC patients in the UK

Hi Krzysztof and welcome! Most of us get our lenses from a hospital eye department where, because we have a clinical need for specialist lenses, we pay the NHS price of £57 per lens, whatever the type of lens involved. So that probably would be cheaper than you're paying in Poland, but I'm not sure ...
by Anne Klepacz
Mon 09 Sep 2019 11:15 am
Forum: General Discussion Forum
Topic: Awaiting a corneal transplant
Replies: 4
Views: 298

Re: Awaiting a corneal transplant

Have a look at this link which has a good description of what's involved. https://www.nhs.uk/conditions/cornea-transplant/ There are 2 types of corneal transplant for keratoconus - a partial transplant (DALK) which involves replacing the top layers of the cornea with donor tissue or a full (PK) tran...
by Anne Klepacz
Mon 09 Sep 2019 10:52 am
Forum: General Discussion Forum
Topic: London meeting 21st September
Replies: 0
Views: 263

London meeting 21st September

Just a reminder of our next London meeting on 21st
https://www.keratoconus-group.org.uk/in ... n-meeting/
We hope to see lots of you there.
by Anne Klepacz
Fri 06 Sep 2019 11:07 am
Forum: General Discussion Forum
Topic: Rejection/failure
Replies: 2
Views: 190

Re: Rejection/failure

I suspect that both 'rejection' and 'failure' are often used quite loosely by medics so really only your specialist can tell you what it means in your case. I think 'failure' is a wider term and covers not just rejection but other reasons why a graft might fail such as infection. I usually talk abou...
by Anne Klepacz
Sun 18 Aug 2019 10:06 am
Forum: General Discussion Forum
Topic: KC and the UK Armed Forces
Replies: 2
Views: 368

Re: KC and the UK Armed Forces

Hello JWJ, If you look at this thread https://www.keratoconus-group.org.uk/forum/viewtopic.php?f=1&t=16278&p=75585&hilit=armed+forces#p75585 you'll see that this is something the KC Group has also been trying to do something about. But although the initial reaction was favourable, since ...
by Anne Klepacz
Sun 18 Aug 2019 9:54 am
Forum: General Discussion Forum
Topic: Routine stitch removal on transplanted eye gone wrong
Replies: 3
Views: 233

Re: Routine stitch removal on transplanted eye gone wrong

No, of course this is not normal and a horrible thing to happen. I do hope you have some better news tomorrow, but it sounds like you have every reason to take this further.
All the very best and let us know how you get on.
by Anne Klepacz
Wed 14 Aug 2019 2:52 pm
Forum: General Discussion Forum
Topic: Awaiting a corneal transplant
Replies: 4
Views: 298

Re: Awaiting a corneal transplant

Hello Gemma and welcome to the forum, I had corneal transplants in both eyes back in the 80s (2 years apart). After 28 years, the left eye needed a regraft which I had 5 years ago. Most people will need correction with contact lenses or sometimes glasses after a transplant and it's by no means an in...
by Anne Klepacz
Fri 09 Aug 2019 3:13 pm
Forum: General Discussion Forum
Topic: Genetic research into KC
Replies: 0
Views: 298

Genetic research into KC

Some of you will remember that the KC Group donated 4K to the Moorfields team, headed by Mr Stephen Tuft, researching the genetics of KC to enable them to do some additional analysis of the data. You may also have read the summary of the talk given by Professor Alison Hardcastle at our AGM earlier t...
by Anne Klepacz
Sat 13 Jul 2019 3:53 pm
Forum: General Discussion Forum
Topic: Financial Help
Replies: 2
Views: 224

Re: Financial Help

Hello AD1 and welcome, I'm afraid financial help with the cost of contact lenses is limited. Those on certain benefits can get free lenses and there is also some help for those on low income through a HC3 certificate. You'll find details here https://www.nhs.uk/using-the-nhs/help-with-health-costs/f...

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