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by Anne Klepacz
Fri 18 Sep 2020 7:57 am
Forum: General Discussion Forum
Topic: Dry Eye Article in Newsletter
Replies: 3
Views: 25

Re: Dry Eye Article in Newsletter

Hi Brian
As well as her NHS work, Sara works one day a week at Ken's Hertford Optometry practice so you could see her there. I've pm'ed you the contact details.
by Anne Klepacz
Sun 13 Sep 2020 4:21 pm
Forum: General Discussion Forum
Topic: Being a parent of a Keratoconus sufferer
Replies: 3
Views: 45

Re: Being a parent of a Keratoconus sufferer

Thank you so much for posting your story here, Cassandra. When I started reading, I assumed your daughter would now be at least in her late 20s and that the failure to refer her to a hospital eye clinic happened at least 10 years ago. So I was shocked to read on and find that it was so recent. No wo...
by Anne Klepacz
Sun 09 Aug 2020 6:09 pm
Forum: General Discussion Forum
Topic: Progression many years after CXL
Replies: 7
Views: 328

Re: Progression many years after CXL

Your previous hospital should send on your notes and scans to your new hospital. Whether they'll e-mail them to you, I don't know. They should, as we're entitled to see our medical notes these days, but what happens in practice... The only way to find out is to ask - I hope you get someone helpful.
by Anne Klepacz
Fri 07 Aug 2020 9:29 am
Forum: General Discussion Forum
Topic: Progression many years after CXL
Replies: 7
Views: 328

Re: Progression many years after CXL

To be able to tell whether things have changed, whoever examines you would really need access to the readings from your previous eye tests and any topography scans. Did the optometrist you saw think glasses or contact lenses could help? Is your current vision affecting anything like driving or the w...
by Anne Klepacz
Wed 05 Aug 2020 2:10 pm
Forum: General Discussion Forum
Topic: Progression many years after CXL
Replies: 7
Views: 328

Re: Progression many years after CXL

That's why I was suggesting an optometrist with a special interest and experience with KC who would be likely to have topography equipment they could use. Some of the entries on our list do say they have a topography machine, but as the list hasn't been updated for a while, many more probably now ha...
by Anne Klepacz
Wed 05 Aug 2020 9:21 am
Forum: General Discussion Forum
Topic: Progression many years after CXL
Replies: 7
Views: 328

Re: Progression many years after CXL

Hello Acacia1 and welcome, The return of ordinary hospital clinics is painfully slow. But High Street opticians are seeing people now, and some do have an interest/expertise in KC. I don't know whereabouts in the country you are, but have a look at our list of optometrists https://www.keratoconus-gr...
by Anne Klepacz
Mon 03 Aug 2020 2:41 pm
Forum: General Discussion Forum
Topic: diagnosis in 30s
Replies: 9
Views: 3903

Re: diagnosis in 30s

Toffee doesn't seem to have been back to the forum since that last post, so I can only guess that all is well! What has happened in the last week to make you worried when you say that there's been almost no change in prescription since you first noticed a change in your vision? As people said in rep...
by Anne Klepacz
Sun 26 Jul 2020 2:15 pm
Forum: General Discussion Forum
Topic: Options?
Replies: 7
Views: 868

Re: Options?

If you're seeing the main guy at your opticians then he used to reply to people's questions on this forum when the forum was quite new so I'm not surprised you're so happy with him. I hope you don't have to wait too long for the lenses. And that your migraine aura can be treated successfully. I can'...
by Anne Klepacz
Fri 17 Jul 2020 9:32 am
Forum: Help and Advice
Topic: Floaters with KC and contact lens
Replies: 2
Views: 329

Re: Floaters with KC and contact lens

This reply is also in the general discussion forum - If the spiders webs have got no worse, then have a look at this which should reassure you https://www.moorfields.nhs.uk/condition ... d-floaters But note the last sentence in the article about a black shadow or a curtain effect. That's a sign of a...
by Anne Klepacz
Thu 16 Jul 2020 9:24 pm
Forum: General Discussion Forum
Topic: Giant pappilary conjuctavitus
Replies: 1
Views: 215

Re: Giant pappilary conjuctavitus

I'm hoping an optometrist might reply to this, but in the meantime this comes from the summary of a talk we had from a specialist at one of our meetings a few years ago - "Giant papillary conjunctivitis can be caused by ‘gungy’ lenses. Antihistamines and steroids are used to treat GPC, but agai...

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