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by Anne Klepacz
Wed 27 Nov 2019 4:58 pm
Forum: General Discussion Forum
Topic: Newly diagnosed. Hospital have booked Corneal Collagen Crosslinking
Replies: 2
Views: 74

Re: Newly diagnosed. Hospital have booked Corneal Collagen Crosslinking

Hello Victoire and welcome, Crosslinking is a treatment that's designed to stop keratoconus progressing and because the rate of progression varies between individuals it's not usually offered on the NHS until there is evidence from corneal mapping that there has been a deterioration over a period of...
by Anne Klepacz
Sat 09 Nov 2019 12:54 pm
Forum: General Discussion Forum
Topic: Cost of contact lenses outside of NHS
Replies: 1
Views: 122

Re: Cost of contact lenses outside of NHS

Hello Albert and welcome, Outside the NHS, contact lens prices vary according to the type of lens. You'll also be charged for 'chair time' which can be quite expensive when fitting our complex eyes. I think the small rgp lenses are probably not very much more expensive privately than on the NHS. Hyb...
by Anne Klepacz
Mon 04 Nov 2019 3:05 pm
Forum: General Discussion Forum
Topic: Driving
Replies: 6
Views: 757

Re: Driving

We've certainly had quite a few people with similar issues here over the years. How will this affect your work - is driving part of your job or is it that you need to drive to and from work? If it's part of your job then your employer should make reasonable adjustments for you (do download the leafl...
by Anne Klepacz
Mon 04 Nov 2019 2:57 pm
Forum: General Discussion Forum
Topic: Intac after 8 weeks pain
Replies: 2
Views: 169

Re: Intac after 8 weeks pain

We don't seem to have many forum users who have had Intacs fitted, but I'm sorry you haven't had a response. I hope you've got a follow up appointment at your hospital soon so that you can talk about your concerns. Intacs seem to work well for some people and not for others - around 10% are removed ...
by Anne Klepacz
Mon 04 Nov 2019 2:48 pm
Forum: General Discussion Forum
Topic: Iveena - IVMED-80
Replies: 1
Views: 202

Re: Iveena - IVMED-80

This potential treatment was mentioned by Professor Buckley at our 2018 AGM (see the article about the AGM in our Summer 2018 newsletter). https://www.keratoconus-group.org.uk/index.php/newsletters/ A hoped for trial in the UK doesn't seem to have materialised and I'm afraid trials like this often t...
by Anne Klepacz
Tue 08 Oct 2019 2:22 pm
Forum: Frequently asked Questions - and Answers
Topic: Am I qualified for a Cornea Transplant?
Replies: 9
Views: 5221

Re: Am I qualified for a Cornea Transplant?

Hi Nicole, You sound like an amazing lady to have coped with all of this. There's probably quite a few of us here on the forum who can't drive because our sight just isn't good enough. But of course, how much impact that has on our lives depends on lots of other things such as how good public transp...
by Anne Klepacz
Sun 22 Sep 2019 11:40 am
Forum: Frequently asked Questions - and Answers
Topic: What are the options for KC patients in the UK
Replies: 1
Views: 216

Re: What are the options for KC patients in the UK

Hi Krzysztof and welcome! Most of us get our lenses from a hospital eye department where, because we have a clinical need for specialist lenses, we pay the NHS price of £57 per lens, whatever the type of lens involved. So that probably would be cheaper than you're paying in Poland, but I'm not sure ...
by Anne Klepacz
Mon 09 Sep 2019 11:15 am
Forum: General Discussion Forum
Topic: Awaiting a corneal transplant
Replies: 4
Views: 408

Re: Awaiting a corneal transplant

Have a look at this link which has a good description of what's involved. https://www.nhs.uk/conditions/cornea-transplant/ There are 2 types of corneal transplant for keratoconus - a partial transplant (DALK) which involves replacing the top layers of the cornea with donor tissue or a full (PK) tran...
by Anne Klepacz
Mon 09 Sep 2019 10:52 am
Forum: General Discussion Forum
Topic: London meeting 21st September
Replies: 0
Views: 380

London meeting 21st September

Just a reminder of our next London meeting on 21st
https://www.keratoconus-group.org.uk/in ... n-meeting/
We hope to see lots of you there.
by Anne Klepacz
Fri 06 Sep 2019 11:07 am
Forum: General Discussion Forum
Topic: Rejection/failure
Replies: 2
Views: 284

Re: Rejection/failure

I suspect that both 'rejection' and 'failure' are often used quite loosely by medics so really only your specialist can tell you what it means in your case. I think 'failure' is a wider term and covers not just rejection but other reasons why a graft might fail such as infection. I usually talk abou...

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