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by Anne Klepacz
Fri 03 Jul 2020 3:20 pm
Forum: General Discussion Forum
Topic: Options?
Replies: 5
Views: 457

Re: Options?

Fingers crossed for your contact lens fitting! Let us know how it goes. As for epi on CXL, although there has been at least one clinical trial in the UK comparing epi on and epi off, I don't know of anywhere currently offering epi on. If you do end up going to your private Moorfields appointment, yo...
by Anne Klepacz
Tue 23 Jun 2020 9:38 am
Forum: General Discussion Forum
Topic: To all who have joined this forum recently
Replies: 207
Views: 125847

Re: To all who have joined this forum recently

Hello and welcome, Most of us get our lenses through hospital eye clinics, where the specialists in KC work, so in normal times I'd be saying ask your GP to refer you to an eye clinic with a contact lens department. But with Covid, clinics have been shut for months and as they re-open, they're going...
by Anne Klepacz
Mon 22 Jun 2020 1:04 pm
Forum: General Discussion Forum
Topic: UK Armed Forces (officer); any hope?
Replies: 13
Views: 4234

Re: UK Armed Forces (officer); any hope?

No, despite chasing, I never heard anything more about a report or got any sort of reply. Which is why I tried another route into the labyrinth, with a new contact plus evidence from one of the Moorfields consultants. And we were getting somewhere when Covid struck. I think I need to wait a little b...
by Anne Klepacz
Mon 08 Jun 2020 10:02 am
Forum: General Discussion Forum
Topic: Options?
Replies: 5
Views: 457

Re: Options?

Hi Liam, It's good that you have a consultation lined up at Moorfields and I hope you don't have to wait too long for it, though I guess they're going to have quite a backlog to catch up with. The criteria for an implantable lens won't be the same as for PRK so don't assume it's a no. And do ask abo...
by Anne Klepacz
Tue 02 Jun 2020 7:36 pm
Forum: General Discussion Forum
Topic: Options?
Replies: 5
Views: 457

Re: Options?

Hi Liam, Just a few thoughts - were scleral lenses ever tried for you? They're the big ones that don't actually touch the cornea because they sit on the white of the eye. Not all hospital contact lens departments have them so if you haven't tried them, you might need to get a referral to a different...
by Anne Klepacz
Wed 20 May 2020 11:14 am
Forum: General Discussion Forum
Topic: Some good news y'all!
Replies: 4
Views: 390

Re: Some good news y'all!

Thank you both for showing that good times can eventually come after bad - something we all need to keep hold of in these strange times! And all the very best with your piggy back lenses. As for how long grafts last, it does depend on the type of graft. The newer partial (DALK) grafts are thought to...
by Anne Klepacz
Fri 15 May 2020 5:43 pm
Forum: General Discussion Forum
Topic: UK Armed Forces (officer); any hope?
Replies: 13
Views: 4234

Re: UK Armed Forces (officer); any hope?

We did make some progress on the issue of CXL and the armed forces just before lockdown, making representations to one of the forces medics who advises on eye issues and also getting support from one of the Moorfields consultants. The feedback was that a meeting had taken place and recommendations m...
by Anne Klepacz
Tue 05 May 2020 1:22 pm
Forum: General Discussion Forum
Topic: Exciting new research project
Replies: 1
Views: 1106

Exciting new research project

The Keratoconus Group, in partnership with Fight For Sight, has made an award of 15K to fund this exciting project. https://news.liverpool.ac.uk/2020/05/04/biomedical-engineers-to-develop-spectacle-lenses-for-keratoconus-patients/ Glasses which could correct the irregular astigmatism of KC must be t...
by Anne Klepacz
Wed 01 Apr 2020 9:31 am
Forum: General Discussion Forum
Topic: Post CXL recovery
Replies: 3
Views: 632

Re: Post CXL recovery

Hi Kyoto and welcome, CXL came much too late for me, so I can't give you personal experience. But do have a look at the summary of the talk by Dan Gore at one of our meetings, which you'll find in the December 2019 newsletter https://www.keratoconus-group.org.uk/index.php/newsletters/ And hopefully ...
by Anne Klepacz
Sat 28 Mar 2020 9:11 pm
Forum: General Discussion Forum
Topic: Covid-19 and corneal transplants
Replies: 2
Views: 720

Re: Covid-19 and corneal transplants

Just to add that letters to the 'vulnerable' seem to have been triggered in some cases by just the word 'transplant' in medical records - the NHS obviously wanted to make sure they didn't leave anyone out even if that meant some people would get a letter when it didn't apply to them. So to re-iterat...

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