Search found 1843 matches

by Anne Klepacz
Thu 17 May 2018 9:17 am
Forum: General Discussion Forum
Topic: List of the best scleral lenses/fitters in UK & Overseas
Replies: 1
Views: 48

Re: List of the best scleral lenses/fitters in UK & Overseas

Hi Mike and welcome, As you say, a lens that works for one person doesn't necessarily suit another, so I'm not sure it's possible to compile a list of 'best lenses'. Most of us get our lenses through a hospital eye clinic, where the expert optometrists for KC tend to work. But if you prefer to get y...
by Anne Klepacz
Wed 16 May 2018 4:35 pm
Forum: General Discussion Forum
Topic: Post graft stitiches
Replies: 2
Views: 32

Re: Post graft stitiches

I had the same experience as Rob - the stitches that were left in for a long time started to snap at the 3 yr mark. The first one that broke was when I was on holiday in deepest rural France, miles from a hospital and of course I had no idea what had happened but was in severe pain with that one. St...
by Anne Klepacz
Wed 16 May 2018 4:26 pm
Forum: General Discussion Forum
Topic: 10 years on.....
Replies: 4
Views: 2464

Re: 10 years on.....

All the very best for the new graft when it happens. And it's easier second time around!
by Anne Klepacz
Wed 16 May 2018 9:42 am
Forum: General Discussion Forum
Topic: Nhs funding
Replies: 19
Views: 2294

Re: Nhs funding

I keep learning new things on this forum! I hadn't realised hybrids lasted much less time than ordinary rgps - but it makes sense given they have a soft skirt.
I'll hear from you on Friday - please make it before 2pm.
by Anne Klepacz
Tue 15 May 2018 3:10 pm
Forum: General Discussion Forum
Topic: Nhs funding
Replies: 19
Views: 2294

Re: Nhs funding

I find this very strange and don't understand your GP saying this is a 'problem across the board' as we haven't had any other reports like this from the West Mids. (But if any forum users have recently had a similar situation, please let us know). Before I try to find out more, could you give me a r...
by Anne Klepacz
Mon 14 May 2018 4:54 pm
Forum: General Discussion Forum
Topic: Nhs funding
Replies: 19
Views: 2294

Re: Nhs funding

Hi June,
Were you given any reason why you couldn't get NHS funding any more? As someone with KC and a clinical need for contact lenses, you should be entitled to lenses at NHS prices. Were you getting your lenses from a hospital eye clinic or from a High St optician with a voucher from the hospital?
by Anne Klepacz
Mon 14 May 2018 4:51 pm
Forum: General Discussion Forum
Topic: Fibro, Arthritis, KC
Replies: 2
Views: 45

Re: Fibro, Arthritis, KC

There is a research paper suggesting a link with rheumatoid arthritis https://www.ncbi.nlm.nih.gov/pubmed/20802320 though nothing as far as I know to link with osteoarthritis or fibromyalgia. But it wouldn't be surprising if everything seemed worse when you're suffering chronic pain. I hope the flar...
by Anne Klepacz
Sat 05 May 2018 5:19 pm
Forum: General Discussion Forum
Topic: Corneal Graft...
Replies: 3
Views: 107

Re: Corneal Graft...

Hi George and welcome, It's disappointing to hear that, despite CXL, you need a graft on one eye - something that I think is pretty rare. I had grafts in both eyes 30 or so years ago (before crosslinking had been invented) and a regraft in one eye more recently. From all I've read here about the pai...
by Anne Klepacz
Wed 25 Apr 2018 4:17 pm
Forum: General Discussion Forum
Topic: To all who have joined this forum recently
Replies: 193
Views: 90834

Re: To all who have joined this forum recently

Hello Jilly and welcome, I'm afraid I'm one of the 'old' ones, but it does mean that I've lived with KC most of my life and can remember how depressed I got when my vision was deteriorating rapidly. I'm too old to have had CXL but it's good that your son has had that done in his better eye and hopef...
by Anne Klepacz
Wed 28 Mar 2018 11:43 am
Forum: General Discussion Forum
Topic: Can you help RNIB make a film about keratoconus?
Replies: 8
Views: 521

Re: Can you help RNIB make a film about keratoconus?

Thanks, Cloud, and I hope your new semi sclerals that you write about on another thread will in time become more comfortable. Though I hope any video made will be realistic. While many people with KC manage very well with lenses for many years, there are inevitably bad lens days or vision not being ...

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