UK Keratoconus Self-Help and Support Association

Hi Cameron, That all sounds like great news. But to answer your question, before the widespread use of CXL, then 'typically', up to 1 in 5 people with KC would progress to a corneal transplant in one eye (and a much smaller number to transplants in both). CXL has really transformed things. Moorfield...

Hi Matty, I can't help on the paramedic front, but just wonder if the answer might be trying different contact lenses. Is it the standard corneal rgp lenses you have? Has piggy-backing (wearing a soft lens under the rigid one) ever been suggested for you? Or mini scleral lenses? Or even, if your eye...

We can certainly try. There are a number of aids on the market to help people with arthritis or a weak grip, but it looks as though they're for the small eye drop bottles that I'm starting to have difficulties with. I don't know if any of them are big enough for a saline bottle. https://www.moorfiel...

As things stand, I don't think there are any other options apart from surgery if a graft starts failing due to age (though who knows what scientists may come up with in the next 10 years when you look at how CXL has transformed things). I can't remember whether you had a full (PK) transplant or a pa...

How did you get on last week?

Yes, these symptoms are associated with cataracts. But they're also often found in KC. I remember not being able to see grey print and having less vivid colours long before I developed cataracts and before I had corneal transplants. I don't know which eye chart your hospital uses, Emma, but the stan...

Tompkins of Northampton is the only one to let us know they offer these lenses, but of course there may be others. At this stage, I don't know whether any hospital departments apart from Moorfields plan to use them. I'll certainly let people know if we hear any more. As for your second question, tha...

Welcome back and thank you! And a good 2025 to all.

Thanks for raising this, as Moorfields doesn't seem to be communicating these changes to patients in any systematic way. I must say I share your concerns. The info in the link says PIFU is optional - I do hope that proves to be the case. And are all changes sudden? What about gradual changes which p...

Some of you will have read about the new CAIRS treatment in our Summer 2023 and Spring 2024 newsletters https://www.keratoconus-group.org.uk/index.php/newsletters/ similar to Intacs or Ferrara Rings, but using sterile corneal tissue. I don't know whether this is yet available on the NHS, but we have...