UK Keratoconus Self-Help and Support Association

Hi Laurada

I'm 17 hve recently been diagnosed with KC and have been offered treatement of the famous C3R.
Which i have spoken to DR. Sunil Shah and his team about, and he did mention intacs.
As far as i know at the moment the C3R procedure is only being trialed on 50 patients at the eye hospital.

Hi asylumxl You did not mention how long you have had the RGP, but most of the time it moves of centre due to the fit and you may have to go through several different fittings before you get one that right for you. Your optometrist will be able to advise further, and hopefully your wait wont be to l...

Nicola, Those ideas are actually excellent but perhaps are outside the scope of what Shamsa is doing. Do you mean that it would be good to put everyone's post graft experiences and spectacle wear experiences in a leaflet? Shamsa, I don't have any specific power points on this but I do have some sli...

I think this is an excellent idea! Teenagers have different concerns and priorities than adults and this could be very useful to give to teachers and schools when a teenager has been diagnosed. There is a leaflet on this site already concerning students http://www.keratoconus-group.org.uk/publicati...

Hi everyone i have been recently diagnosed and im currently studying for my alevels as part of my english coursework i have decided to write a leaflet for teenagers with KC . if you have any ideas or thoughts that could help with the productyiopn of my leaflet please feel free to post them, I also r...

Andrew Well when i went yestertoday my diagnosis of KC was confirmed and i was then talked to by Dr.Sunil Shah who said it was likely my KC was to progress further as i got older, however i am eligible fo the new trials introduced in the west midlands but he has not yet confirmend patients for the t...

hi all i just wanted to ask a quick question, i am going to see dr suni shah this afternoon and i may recieve my official diagnosis of KC, if i do will i still getting a free trial that was mentioned? my appointment was bought forward due to "unforseeable circumstances" could this possibly...