UK Keratoconus Self-Help and Support Association

HI .. I have a tint on my lens in my glasses and this helps with the glare.. they come in varring degrees I find 18% does the trick nicely... so it maybe worth looking into that and it only costs about £10 to have put on.

HI I used to be a social worker before I had to give up work D.L.A comes in 2 parts one part is for care this is if u need help washing getting dressed... or you need soemone to keep an eye on you as may hurt yourseof for example... and the 2nd part is mobility which is what you might quilfy for... ...

Hi I have just had a similar experince about 2 weeks ago I was told I would lose the sight in my right eye... and was in a bit of state to say the least..... but having been on this site and read the info Ann sent me I feel so much more postivie. The info I was given 2 weeks was all worng..... I gav...

Hi well I went on thurs for my fitting.... I must admit I saw a brillitant bod.... He did some tests and said yes I did have K.C ( which I knew) he had these pretty pictures with different colours on and showd me my naff corneas.... it is worse in my right eye than my left.... but there was nothing ...

Hi what do u do Andrew to meet all these famous bods??..... I used to work for a Charity so we the odd famous person to come give us some money, or to rasie an issue or two.... I would love to meet ..umm can't think of any one off hand I would have loved to met Princess Diana and have a log chat wit...

Hi A bit late but so what.... I had a brill weekend... freinds round sat for lunch and lots of chit chat..... and a bottle or two of wine!!! then curled up on sofa in the evening to watch CSI.. Sunday long lie in... and took my pooch (Tadie ) for a long walk in the park with my best friend.... and b...

Hi If u get the lens at a hosp u get them a a reduced rate....from what I have read about £50 per lens.... I know last time I had them and being on income support I did not have to pay..not sure if this is the case now..... I know last time it took me a year to get into the hosp system but I have be...

:D Hi there me again.... I have had great fun exploring this sight over the past few days.. and I have learned a lot.. like I am not the only person who wears a baseball cap.. and goes mad when I lose it.... coz of the glare etc....I have learned a lot about the condtion and dont feel so scared now....

HA HA I will bear that in mind next time I go..... It might make the app a bit more fun!!!!!! to say the least!!! thanks for letting me know

:D Thnaks for the info it is nice to know others are out there.... K.C seems to be a bit strange condtion I must admit as having several this one seems to be the oddiest!!! I am sure I will get to grips with it and i will be a bit more pushy (if they have to re arange there room) with them as I was ...