UK Keratoconus Self-Help and Support Association

Thank you for the suggestions, I use Hylo Forte and Xailin a lot, the Hylo night seems to have been discontinued but the Xailin works just as well. Interesting to read that steroid use can impact the cataract - that explains a lot! The cataract will be done by the graft surgeon, so I have no worries...

Hi, I had the same thing done to my left eye at the end of August, it was a graft redo, the old graft had worn out after 40 years and my sight had almost gone. It went very well and my vision had improved almost straight away so I'd say it's a good thing. I have a cataract in my right eye and had th...

Hi, I've had KC and cataracts in both eyes for some time, in the last year I've had corneal graft redos to them both and had the cataract removed from the left eye. I use a 23mm scleral lens in the right eye, even though there are still stitches in it, and the cataract is getting worse. The treatmen...

Hi Cameron, I've been using a wheat heat/cool pack for a few years, first thing for about 10 minutes, it really wakes me up and gets my eyes moving. I have KC and had surgery last October, my consultant said it is fine to use the pack, so if it works for you, it should be ok, it sounds like yours is...

Hi, I am back again with yet another lens issue! My left cornea is very ectatic and I am now on the semi urgent list for a regraft, consultant said at my last appointment that it is as bad as it can get...I am persevering with a scleral lens whilst my right eye continues to recover from a regraft, w...

It's not available in the UK on prescription but Xailin gel is just as good.

I have loads of spares but they are bespoke, so made for me, I agree with other comments on here, used lenses could cause major damage to the corneas, please do not use any that haven't been made for you. You will be shown how to handle them, and if you struggle, tell your ophthalmologist.

Thank you Anne, I am doing well, just trying to get the left eye working better, I really appreciate your messages.

Hi, I've just had right regraft, and, so far, it is going well, a bit sore but that's normal, I think. I have a scleral lens in the left eye, which is awaiting a regraft, but I am getting air bubbles in it again (this had stopped but I think the shape of the eye and cornea are such that bubbles are ...

Hi Anne, Thanks for your reply, and encouraging words. At the moment, any improvement in vision would be a help! I think I have a very good surgeon, had the pre op assessment today and I'm sure he'll do his best, they can't really say everything will be fine, and there will be 20/20 vision, just in ...