UK Keratoconus Self-Help and Support Association

I think Presbyopia accurately describes my secondary eye issue, for sure. As a child I wore glasses for close work - the KC kicked in about 16 (diagnosed at 20 after being misdiagnosed multiple times). I’m 37 but it is more common to age prematurely with regards to eye sight as the muscles do the wo...

Wow, thank you so much for all that detail Lia and graham! I had a pair of glasses made up for about the 10th time; however, the ghosting is horrendous (my good eye with peripheral scarring ghosts whereas the one with worse VA and central scarring doesn’t) and everything/everyone has a prism of colo...

Graham, I love the piggy back system, it’s been amazing and saved my sight for so long but I also have mast cell activation syndrome with the EDS and suspect it’s a mix of lack of oxygen plus chronic inflammation - don’t want to worry anyone as for most, I’m certain this doesn’t happen. I’m a troubl...

Thanks Graham, Thankfully I’m going privately. I’ve been advised today (by my optom) that the limbal stem cell deficiency in my good eye is likely down to the long term use of piggy back lenses and the dry eye/allergy conditions I have. The advise is to leave that lens out for 6months to see if the ...

Hi everyone! Thanks for having me... I’ve had Keratoconus 17years and copped with RGP’s the whole time. My eyes recently started getting lens intolerant, then 4months ago I suffered Hydrops in my left. I also have Ehlers Danlos which has seemed to complicate things as my RGP’s have caused significan...