UK Keratoconus Self-Help and Support Association

Once again, there are so many different stories people get told and it's so inconsistent! hence why this new registration would be a good thing. I totally agree with what you both say like I said above "obviously if sight is so bad you driving would be dangerous to you and others, i'm not endor...

ahh ok becuase i was told by all my consultants that I didnt have to declare anything with regards to driving. I will ask again at my next visit,
Thanks

Steve! dont fear it does get easier, to be fair I think I was lucky I was diagnosed at 12-13 so my consultant put mine in and I literally just had to sit there in the chair for 30mins or so then he would take them out again for me, then I built up and did it myself- its just a trial and error type o...

Hi all, this is a very intersting topic. Whilst this registration would benefit me it seems, as im just about to apply for my first jobs after finish university, so for employers etc this would be usefull. I think this new registration would make people more aware of KC... However I dont know if it'...

Hi, im just doing my 3rd year nearly finished now at leeds met. You definately can get extra time, and special considertions with a consultant note provided, they have been very good to me. I'm sure if you just explain your situation to your uni they will be fine, and will help where ever they can--...

hmm that doesnt sound helpful what so ever, i dont think thats acceptable the way she was, maybe it is best to ask around or even try different areas to find some one else, at the end of the day you have to have a good relationship with them to fully gain the benefit. your son should have her full a...

hi dotty, well i was diagnosed with KC when i was 12, so i know how your son is feeling, all i can say is, find a good consultant, mine was willing to spend hours with me until i could put my lenses in, i know they are probabely few and far between but look around. also just be patient i do and have...

I have had 3 opinions on my problem now and the one thing that they have all said is "don't have laser treatment" - in fact what I have got which gives visual symptoms very similar to KC can actually be caused by having laser treatment - although I haven't! :roll: this is interesting beca...

Although your in the US, im 19 now and had lazer on my left eye when i was 18, it has worked a treat!!! my situation seems very similar to yours, i had a hydrops which scarred over and this scar was central so... my consultant suggested lazer to take the top layer of this scar of so then reducing th...

hi nancy, dont worry your not the only 1 having this done! im having it done after my exams this summer! I'm in the UK so obv having it done here but it sounds like what im having is the same, i have central scarring in one of my eyes and havent been able to wear a lens, so they going to remove some...