UK Keratoconus Self-Help and Support Association

I go to pebble beaches if I have a choice. If its a sandy beach I take my lens out when we get there and send someone else to get the icecreams!

K

Libby I share your thoughts on how much even the slightest improvement can affect what you can and can't do. I have only been able to wear a lens in one eye for the last couple of years as my right eye decided after 30 years of hard lenses enough was enough. Fortunately my left eye is still game and...

Isn't it normal to be just a little anxious when you can't see well enough to know you are not about to tread on a step that isn't there/a deep puddle/the dogs tail? But are we any more anxious than other people with sight problems?

K

Thanks everyone for your comments. I see there are people out there doing their best to find answers. I don't know much about the scientific world and how much sharing of information goes on but duplicated research is not a bad thing i guess if it increases the chances of proving the findings to be ...

Andrew Thanks for the welcome. My reason for asking about research is that I have three children and I feel pretty helpless just waiting around to see if they will develop this condition too. So far they are fine but I didn't start with this particular eye problem till I was 23 so who knows. As kera...

I found this web site today and I am glad i did. I have had keratoconus for many years and on reading the messages left by other sufferers I can see all the problems I have had over the years have also been experienced by others. I found out lots of new information my optician didn't tell me.But wha...

Every morning when I 'put in my eye' as it is known in the family I am grateful I can see well enough to see my childrens faces and do the normal things people do like reading the paper, watching T.V.,checking the prices on things in the shops, enjoying the views when I walk the dog, cooking without...