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by John Smith
Tue 08 May 2018 12:35 pm
Forum: General Discussion Forum
Topic: Vision with sclerals
Replies: 4
Views: 213

Re: Vision with sclerals

Hi Malluc, and welcome to the forum! You might need a better fitting lens, but try taking the lens out, cleaning it if it looks to be full of gunk, refilling with saline and re-inserting. I find that over time (and only sometimes), my lens gradually loses the saline. Because scleral lenses are reall...
by John Smith
Thu 12 Apr 2018 11:57 am
Forum: General Discussion Forum
Topic: RNIB FILM -"IT COULD Damage the cause of our group"
Replies: 4
Views: 274

Re: RNIB FILM -"IT COULD Damage the cause of our group"

I agree with the comments above - up to a point. I think the issue here is one which could smack of ageism. 1. The RNIB film is going to be aimed at a younger audience, I understand. 2. The younger audience with progressive KC are more likely to be able get CXL than those of us with a few years unde...
by John Smith
Wed 11 Apr 2018 5:11 pm
Forum: General Discussion Forum
Topic: Long term scleral use
Replies: 13
Views: 1054

Re: Long term scleral use

Really glad that you've progressed. Do keep us informed on how you get on with the replacement lenses when they arrive.
by John Smith
Mon 09 Apr 2018 4:27 pm
Forum: General Discussion Forum
Topic: Newsletters on forum for 2017 & 2018?
Replies: 4
Views: 271

Re: Newsletters on forum for 2017 & 2018?

The newsletters have been "opt-out" for some time, but only 3 people opted out if I remember correctly. I agree with you though in principle but: * Many studies have shown that charities gain far more traction from a paper newsletter than from an email which probably won't get looked at. *...
by John Smith
Thu 05 Apr 2018 3:48 pm
Forum: General Discussion Forum
Topic: Newsletters on forum for 2017 & 2018?
Replies: 4
Views: 271

Re: Newsletters on forum for 2017 & 2018?

Hi. I can confirm that the recent newsletters are now online on the new website, which will be launching to everyone soon. We're not spending the time at the moment having to keep two sites up-to-date. In the meantime, if you send us your postal address, we can add you to the mailing list so you'll ...
by John Smith
Mon 12 Mar 2018 11:17 pm
Forum: General Discussion Forum
Topic: Long term scleral use
Replies: 13
Views: 1054

Re: Long term scleral use

I've been wearing sclerals on-and-off for about 15 years now. Currently I wear one in my right eye for about 14 hours a day, but the left one only for about 8 hours. That is gradually improving though. I've had the left lens for about 2 months.I insert the right lens correctly first time almost all ...
by John Smith
Mon 12 Mar 2018 11:04 pm
Forum: General Discussion Forum
Topic: Advice Please - Commuting to/from work
Replies: 8
Views: 665

Re: Advice Please - Commuting to/from work

Hi Heather, One option which may be worth considering is "Access to Work". I understand that under some circumstances, they may provide a companion to assist you on your commute. I agree with the suggestions above though - talk to your HR and occupational health, get them to confirm that y...
by John Smith
Mon 12 Mar 2018 11:04 pm
Forum: General Discussion Forum
Topic: Advice Please - Commuting to/from work
Replies: 8
Views: 665

Re: Advice Please - Commuting to/from work

Hi Heather, One option which may be worth considering is "Access to Work". I understand that under some circumstances, they may provide a companion to assist you on your commute. I agree with the suggestions above though - talk to your HR and occupational health, get them to confirm that y...
by John Smith
Wed 07 Feb 2018 4:13 pm
Forum: General Discussion Forum
Topic: Money no object consultant/treatment
Replies: 3
Views: 437

Re: Money no object consultant/treatment

Only a little bit science fiction from me... There have already been experimental patients who have had a (small) number of artifical pixels interfaced to their optic nerve. I'd use my squillions to speed up this research and give me an HD level of pixels. 6 million dollar man? Nah, it will cost FAR...
by John Smith
Wed 07 Feb 2018 4:06 pm
Forum: Frequently asked Questions - and Answers
Topic: Am I qualified for a Cornea Transplant?
Replies: 7
Views: 2488

Re: Am I qualified for a Cornea Transplant?

Your cornea is made up of several layers of cells, and the job of the back layer (the endothelium) is indeed to pump water out of the cornea. Unfortunately, we are born with a number of these endothelial 'pump' cells, and they are never replaced. So it does indeed sound feasible that you could need ...

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