UK Keratoconus Self-Help and Support Association

Hi there - I was diagnosed in the 80's and would have jumped at the chance of cxl if it had been available back then. I would go for it without a doubt x

Hey Paul - just wondered what your graph experience is - my daughter needs one very soon.

Kind regards

libby

Hi there - sorry I can't offer any advice on the sclerals but I totally agree with your last,comment. The,forum seem,unusually quiet. Where is everyone.

Libby

hi Kris

Yeah 57 days is pretty impressive. Do you have KC and how did you find the treatment at Moorfields.

Kind regards

Libby x

Thanks guys for your responses - it really makes a difference being able to talk to people who have walked this path. I know we need to know about the problems that can happen but all to often it seems that's all wek hear. To hear some positive feedback is good and heartening to hear. I still feel v...

Thanks for your response - tbh the fact that they say the eye is seriously at risk of hydrops has helped us to decide on a graph. Also the fear that it may come into the other eye. If we can get the chance to try to get some vision back into this eye if the worst happens and it developes in her left...

Just got back from the hospital after being told that my daughters right eye is extremely thin at 257 and at risk of hydrops - a contact lens is only getting her seeing the top letter and therefore a graph is her only option. I think we both already knew what today would bring - the waiting list is ...

hi everyone - I'm from Derbyshire and was diagnosed with bilateral KC in 1980 - just wondered where you all attended hospital for your reviews and contact lens apps x

Libby x

Ryan where abouts are you getting your cxl done - is it through a hospital x

After a pretty shocking eye appt on tues when my daughter was told her right eye had rapidly deteriorated in the last 2 years since she last attempted contact lenses (2 years ago she was reading 5 lines down - on tues they struggled to get her to read the 2nd line). We have now been given an appt fo...