UK Keratoconus Self-Help and Support Association

Dear all, Just wanted to give everyone a heads up that scleral lens from BostonSight will become available at Moorfields from 2024. https://www.bostonsight.org/bostonsight-partners-with-moorfields-eye-hospital-to-bring-bostonsight-scleral-and-education-to-the-uk/?amp=1 https://eyewiki.aao.org/Boston...

Thanks gsward for your input. I’m actually cared for by Moorfields so I’m pretty sure they should have the infrastructure and staff to get me sclerals! I’ve recently seen more change in my visual acuity with my glasses so I’m looking forward to seeing them this month for my annual check up. I will b...

Many thanks for your input. I agree with you, and that is my plan. They originally were very reluctant to prescribe me sclerals. I do feel that my night vision is now much worse with more glare. I personally feel this may be the time for me to move onto sclerals now. I really hope they understand th...

Hello Nightvision and all, I’m really sorry for the delayed reply! It’s difficult for me to say exactly when retrospectively, but I feel things started to stabilise a bit around the 6month mark. At my 1 year appointment I was told that my keratoconus was stable. At the time I had a few appointments ...

Hey, I had my CXL in both eyes at the same time in 2019 November at Moorfields. I won’t lie, it was tough for the first 24-48 hours post op and I had to take 2 weeks off from work for recovery. I had my 1 year follow up and they said things have stabilised. I’m currently using a rgb on the right eye...

Thanks Anne and Andy for your input! Mr Gore was actually the surgeon who performed my procedure so I trust his comments highly! I am not saying that my vision has deteriorated significantly, and I must say that things are almost what it used to be pre CXL. It’s mainly the ghosting and to some degre...

Hello All, I am new to this Keratoconus forum, and many thanks to everyone so far who have provided valuable advise and support to each other through this forum! I have been diagnosed with Keratoconus since I was 25 years old, with my right eye being much worse than my left eye. As a child I suffere...