UK Keratoconus Self-Help and Support Association

The main thing I would say is don't beat yourself up about it. Accept whatever happens as normal and try not to get stressed about it. You need enough mental energy just to find your way back and learn all the new stuff you gotta learn and reform the new working relationships. Don't waste any of you...

I was told by my optom that the lenses take at least six weeks to bed down properly. She said I should think of myself as building up tolerance at least until that time. Then when I went back for my six week check she's decidsed to give me another six weeks before having me back again to discuss pos...

I got myself referred to an eye hospital first, who then referred me back to a local optom who has a specialist lens fitter & plenty of experience with KC. I have had all kinds of awful experiences with high st optoms before this, so finding a firm with a friendly professional who knows why my e...

I was diagnosed in December after rejection from a laser eye clinic. I've worn glasses for 20 years for what I thought was astigmatism - none of my optoms even noticed that I had KC - or at least they didn't bother to tell me. Mine is very mild - I have managed perfectly well with glasses for 20 yea...

I'm right handed.

My left eye went first and was very much the worst eye for some time, with the right one almost normal.

But in the last few years the right eye has gone too, caught up and overtaken the left, which is stable.

Name: Debbie Age: 39 General Location: Staines How long since you were diganosed: 3 months, but know now that I've had it much longer Which eye is your bad eye?: Right Have you had surgery?: No Hardest thing for you about living with KC?: I'm very lucky it's really mild and I shouldn't complain. But...

Hi, you asked my age so I'll tell you - but don't tell a soul please. I'm 39 - going to be 40 in the summer. I was just diagnosed with KC at Christmas, although now I know a bit more about it I can see that all of my sight problems have been down to mild KC all along, which was so mild to be below t...

This site does seem scary, but as one of the moderators kindly pointed out when I joined, it's only usually the people having a bad time and needing support who post - that's why the site can give the impression that KC is worse than it is. There are hundreds of people out there with KC who are lead...

I had my first contact lens fitting on 25th January this year. it was agony just like you described. The first lens she put in was awful - the fit was all wrong but she needed to see it in my eye to decide what the correct fit should be. She tried a different lens on 25th January which was already b...

How do I get an optometrist added onto this list? i have had fantastic service at the place I was referred to by my eye hospital and would certainly like to give them a plug.