UK Keratoconus Self-Help and Support Association

Hi Bluesfan, I'll try to let you know how I found the C3R. Sorry to hear you have not had a good result from C3R Jackura. It's one of the very few bad stories I've heard. As you've read some of my posts, the onset of KC was very rapid for me, at the end of last year. Only 1 cornea had been effected ...

Hello Colin, I'm sure my response is late now and hopefully your vision is on it's way back to the way it was, if not better. I had crosslinking last November in one eye and last month in my 2nd eye. Your eye will be inflammed and disturbed from the procedure and it will take a few weeks to fully re...

I didn't have them for 33 years, then started seeing them last year. A few months later I was diagnosed with KC. The good eye didn't show signs of KC and there were no floaters. Then a couple of months ago, I started noticing them, which made me think KC may be starting in that eye. Low and behold, ...

Andrew, You state that C3R does not stop KC progressing. However, C3R has been shown to halt progression for KC, to date. There is approximately 7 years of trials on humans and 2 more years on pigs corneas. Obviously it cannot be said that it stops it indefinitely, because the research isn't there, ...

Hi there, I must admit, I'm not up on all the 'plasty' treatments, but I guess it's basically transplant. What vision have you achieved now Tom? Do you work? You are very young, but at least you should be shot of the disease now. I'm glad you've found some good counselling. I was very down and in a ...

Hi there, Yeah, I do feel lucky to have caught it at this stage Tommy, although if the Optician had spotted earlier than my 5th visit, I may have avoided INTACS. How have you managed to get your vision sorted? Manish- Although the really long term effects of C3R are unknown, the specialists reckon a...

Hi Edward, I had INTACS in one eye two months ago. I'll answer your questions. 1) Are intacs any good for mild KC with intolerance to contacts? Yes they work best for mild/moderate cases. 2) Do they help with ghosting, glare, streaking etc? They have reduced my astigmatism from 4/5 to around 2 so so...

Hello Manish, Not sure if you have all the info you require to consider C3R. I had C3r in one eye in Novemeber and then in the other eye 1 month ago. I was diagnosed in November with rapid progressing KC so had the C3R ASAP. Up till now it has ceased progression and therefore I would highly recommen...

Thanks very much Gareth. I'll look into that. I think I need to get a job out of an office, quite difficult to escape PC's these days though!

I suffered from bad headaches for 4 months, prior to KC diagnosis, in October last year. After having 2 lots of crosslinking (1 per eye) and INTACS, I'm still getting headaches and cannot focus on a screen, unless my nose is pressed up against it. I've been off work for 5 weeks now. I do not want to...