UK Keratoconus Self-Help and Support Association

I wish had stopped by to tell about a new car, or winning the lottery.....but, i'm here today to complain about the intense (WOW!!!) surface pain many days when I wear my RGPs. Sadly, there is no way to work without my lenses in, and also no way I can work when the PAIN (!!!) takes over. It gets so ...

Well, just for the record, mine didn't start till I was 43-44 or so, and got worse by the year till i finally went for grafts when I was 55 and 56 years old, it showed no sign of stopping and was getting worse till the day they took off the original natural corneas. I think I would have been one of ...

Andrew, I have tried a fully enclosed dust goggle....and have found that i have trouble keeping the dust-free INSIDE while stored in the shop. Let's face it, this is a dusty business. Some days are no trouble. Yesterday, for instance, I never turned a machine on, but did spend time cleaning and stra...

the only one of your issues I can really address is the difference in color between the two eyes.....i have the same thing, and suppose it is because the corneas came from different donors. Here In Louisiana they could have come from any number of other races, ages, and sexes......I have learned to ...

Well, it has been a while since I've been here and moaned and whined.......so i'm back . Hope you have all been well, and PATIENT. .......Patience, you know, is the most important medicine for us KC people!! OK.......I still have two stitches in the first graft (16 months) and the 16-point running s...

Ah, yes.......that brings back the memories. I am just ten months now on graft #2, left eye.

Best wishes, be patient, use the drops and be patient.....oh , I said that already.......and be patient. Piper

I met with my optometrist this week. He says that due to the irregularities of my post-graft corneas that spectacles are not an option. damn Got the new right lens.......though I see fairly well with it in, the surface pain overtakes the visual necessity after a couple of hours. Translation: When it...

Dear Lynn, thank you for the kind explanation. I met today with my Optometrist who put my new right lens in my eye. It is pretty crispy feeling yet, that eye has been without an RGP for a while. It is his opinion that I cannot be fitted with spectacles successfully due to the surface variations of t...

Lynn, thank you for your professional info and opinion. I shall take it to heart. I do have a question of terminology/optics: I basically know what astigmatism is.....but don't know if that is what I still see. When I look at a streetlight or a headlamp I see many MANY of them, grouped closely, to b...

Thank you Lynn. I don't think my eyes CAN re-focus as I have had both lenses replaced with acrylic inserts. I may not wish to wear the spectacles all the time, usually only at home after work. Currently, i wear my RGPs at work, and have them in and out several times due to pain, and when I get home ...