UK Keratoconus Self-Help and Support Association

Thanks Andrew, Good advice, though I was under the impresssion from the website that prescription of already fitted lenses could be sent to them for replacement lenses. I'm down to my last pear at the moment and losing a lens or both without a replacement would be terrible - to have to wait for them...

Hello again,

I contacted the opticians today who say that they will provide a prescription for online ordering, as long as the service can provide the same lenses ....

Hello Everyone, I suffer from KC particularly in the right eye and have experienced a bit of a nightmare in terms of RGP contact lens availablility. So I go to a London hospital (not Moorfields) and all the tests are done, I then proceed (as instructed) to a local opticians (run by the hospital eye ...

Hello and Thanks for the reply. Thats helpful to know that. Also perhaps after not wearing a lens for a long time then wearing a test lens for a few hours with good vision, then going back to how it was is difficult in the realisation of the sight lost? Thanks so much for the advice. Ben

Hello, Is it alright to ask for a bit of advice? I went to an appointment with a nhs opthamologist to try and fit a RGP lens in my right eye (with quite bad KC). Anyway, the consultant put a few drops of something which he said would sting, and it did! He said this would help with the sensitivity, b...

Thanks for the reply!

I suppose all I can do really is ask to try the lenses as you suggest.

Best Regards,

Ben

Hello, I was diagnosed with KC in 2001 and prescribed softperm lenses, the ones with the hard centres and soft outers. The vision I got with these is very good but the pain was excruciating! especially if the soft outer tore (which was often the case). I was recently prescribed RGP lenses which have...