UK Keratoconus Self-Help and Support Association

I've been wearing scleral lenses for about 8 months without any problems. I can usually wear them about 9 hours without any discomfort, at which point I would rest my eyes for an hour then wear them again for 3 hours or so. In total the wear time would be around 12 hours and rest time 12 hours inclu...

Just a final update on this thread. It's been about 3 months and I'm using the lenses comfortably for 12 hours plus a day without any issues. Insertion is very easy now and can't remember the last time it took more than one attempt or had any bubbles. In case anyone is interested, this is the lens I...

Hi Sach, thanks for the note, although I believe i currently am using mini-sclerals - although i never got a choice. Thankfully i'm able to get both lenses in first time now. I found with trial and error that using the full length of my index and middle finger (like a scissors gesture) to hold my la...

i had my follow up today and thankfully the lenses are covered by warranty so i'm getting a new pair with a different fit. This should hopefully reduce the indentation marks left by my current lenses. I was told that the indentation on the sclera wasn't something to worry about so long as there was ...

Thanks cloud and john smith for sharing your experiences. Things have improved, I've gotten better at insertion. I still have not used them at work and will only wear them for a few hours at a time when I am at home or somewhere nearby so I can remove them if needed. Hopefully, I will be able to wea...

20 years thats a long time but i guess overall your experience was positive. Unfortunately, a new fit would cost me another 2000 pounds so its not really an option for me. I dont think its blanching as there isnt any redness or red veins appearing just an outline of the lens almost as if the lens ca...

Thanks Graham, appreciate your advice. I'm definitely being impatient, I guess partly because the reality of living with KC has only just now hit me. I've also noticed that when removing the lenses after 2-3 hours, I have a faint ring on my eye where the lens was resting. The eye is usually then ten...

I've had my scleral lenses for a few days and feel quite pessimistic and depressed. Although the vision they give is great I just can't see myself doing this long-term. Every time I botch an insertion (most attempts) I feel like I'm causing another abrasion to my eye and it just feels like doing thi...

Thanks Kris, im looking forward to getting my lenses. Hopefully I'll get used to them, as someone who has never worn contacts of any kind, its bit of an adjustment - having to fiddle with my eyes every day is a bit scrary. I guess the benefits of having them are enough of a reason to persevere until...

I had the CXL procedure 7 days ago on both eyes. Thankfully there was no pain during the surgery or on the following days. Just a painless scratchy feeling and some dryness from the bandage contact lenses esp in the morning. The first 3-4 days were very blurry and foggy, iI was really discouraging a...