UK Keratoconus Self-Help and Support Association

Hi Gill My son Alex is 17. He got keratoconus later than my daughter and although he has it in both eyes only 1 eye has deteriorated so far so this was the eye they operated on. He has recovered really well. Very painful first night but we were given painkillers and local anaesthetic drops to use - ...

I rang the hospital today as despite all the painkillers, Laura's still got a continuous headache. We Have an appointment to see him tomorrow just to check everything is OK as I think a bit of reassurance would be good for her.

Thank you. We have an appointment to go back in 3 months to be assessed for new contacts and to see whether it is possible to have glasses for when she cant wear them. Laura has a kerasoft lens for her good eye at the moment and the consultant has said she could try using it in January while we are ...

Hello - as her cornea is too thin they have said she will need a transplant at some stage but not yet as she is too young and before the c3r was coping wih difficulty with her other eye. We are hoping that after the eye settles down she may cope better with her contacts as she has had lots of troubl...

Hi - Both of my children have KC and had C3r ops about 2 weeks ago. In our area it is not available on the NHS and the consultant has recently started offering this operation privately. My daughter aged 13 , has quite advanced KC and has had hydrops in one eye which has left scarring. The cornea in ...

my 12 year old daughter has has Keratoconis for 2 years and has been wearing RGP lenses since September 06 prescribed through the REI in Plymouth. She has been having problems with tolerating her lens in her worst eye since January. Have been back to the REI who say that the lens is a good fit so he...

The Eye infirmary in plymouth is in a completely separate unit near the city centre - the address is Apsley Road Plymouth PL4 6PL. If you need it the best way is to follow the signs for the train station as its close by. The casualty unit do ask people to phone ahead before they come in the number i...

Hi - my daughter (age 12) has keratoconus diagnosed last year and I am wondering if this is a good safe site for her to access to talk to other k sufferers. My husband has K and had a graft in one eye 2 years ago which has been successful however Laura's view of K has obviously been coloured by his ...