UK Keratoconus Self-Help and Support Association

Just wanted to add on to what others said, you've mentioned that he is hypersensitive to allergens. It would be good practice to prevent eye rubbing as much as possible and to alleviate it with medication (confirm with your medical professional) as KC is aggravated by eye rubbing. Also the CXL proce...

I only registered today, but I just wanted to congratulate you on making it through so many years with keratoconus (I've only had about 8yrs so far). I tried all the lenses you mentioned but I got my fit for a scleral lens today and it was amazing (comfort/vision) compared to all the others. Good lu...

I agree with Lia above, CXL is very effective especially if it's caught in the very early stages before it begins to progress. When it starts, it moves quickly.

Hi, I'm new to the forum. I've been a KC sufferer since around '08 (I'm now 23). I've tried every lens (RGP too painful, piggyback too laborious, soft ones did nothing and hybrids kept clouding after an hour). So safe to say I never used any lens for more than a week after getting them and I've gott...

It's completely normal. Tastes ugly though. Mind you I had the epithelium-off version of CXL in '08 so I was worried more about the pain