UK Keratoconus Self-Help and Support Association

I've tried pretty much every lens from kerasoft, to sclereals and a mini sclereal was the only one i could tolerate. We've tweaked them so many times ive lost count. I dont think there is much more than lenses can do to keep because the issue is the haze left from CXL isnt treatable with lenses.

I think it scares me because i know that it still probably won't cure the double vision i have, and if it doesnt fix that then its pointless since i can get 20/20 vision with lenses but it makes the double vision worse. Which a graft can also do so ive been told. And also the discomfort worries me. ...

I've done lots of research on corneal haze and length of time post CXL and what i have found out is the only cure is a transplant, which im not gonna lie scares the hell out of me. I just cant come to terms with it. CXL was meant to stop me from needing a transplant anytime soon, if anything if i ha...

I apologize in advice this is probably gonna end up in a long post that will make zero sense, so since i had crosslinking done in May 2016 ive suffered double vision, we've tried all sorts different lenses, drops everything i decided to have CXL done on my right eye last year because its better than...

I spoke to the RNIB who pushed me back to ATW which won't be able to help still. They also said the only thing I can really do it have another meeting with the area manager and HR at work then take it to a tribunal but because work have said that I can't use tills and thats considered a reasonable a...

The adjustment they have made and say is reasonable is taking me off tills altogether which is neither practical or helpful to anyone its leaving me struggling with my depression, because in a small shop with only 4 staff remember at a time having g one not do tills puts more strain on the rest. And...

Hi just wondering if anyone can help, I need a magnifier screen cover for tills at work and it needs to be suitable for touch screen tills. Anyone got any places I can look I've been searching online but can't seem to find anything suitable. I've been to occupational health and they suggest software...

Hi Lia Its in both eyes but worse in the eye that I've had crosslinking I've not had new glasses in over a year now. He kept saying wait until your eye has settled down but I think he's finally going to send me for a contact lenses fitting too and I can't really afford to keep paying out for new gla...

Hey Just wondering if anyone can help me. I had crosslinking in my left eye 3 months ago and the past few months I've started with double vision that it slowly getting worse. My doctor doesn't seem to know what's going off and I've got to wait another month before I get any answers, I'm.still just u...

I had CXL last Friday and gave been getting on fine except for the eye drops every time I take them I can taste them in the back of my throat and it makes me sick. Is this normal? What can I do to stop it?