UK Keratoconus Self-Help and Support Association

For me I can't say I persevered for very long, after a few days wear I thought I'd best check with the KC family to see if it was worth sticking with. So I've still got a long way to go in terms of adjustment.

Thank you all for sharing your experiences with this, I'm very encouraged to hear that other people have managed to make the lens-glasses combo work. I'll certainly try it in front of the TV Matt, movement with this set-up is what flaws me at the moment too. Also Jake & Lia, I hadn't thought to ...

Hello I am one of those Keratoconus sufferers that has not yet managed to find a method of visual correction that works for me. When I wear glasses I get better vision through my right eye and when I wear RGP lenses I get good vision through my left eye (despite seeing a number of specialists, I've ...

Hi Sarah, I'm so sorry to hear that you're eyesight is degenerating this rapidly. I know how scary and frustrating this feels. Sometimes ketatoconus stops progressing by itself, but in many cases it doesn't. If you're in your mid 20s and it hasn't yet stopped then I think that it won't do so natural...

Hi James, Yes, I started with epi-on in February last year and then subsequently epi-off in both eyes. The problem was, as my first eye continued to deteriorate, we couldn't tell if it was due to the operation of natural progression of the keratoconus. I've heard that the outcomes of epi-on operatio...

I've just joined the forum and wanted to say 'hello'. I was diagnosed with kerotoconus in my early teens and have never met a fellow sufferer. Its kind of exciting to find a community of people who will (probably?!) understand the frustration of fitting contact lenses, the perils of driving at night...

Hi Gemma, I've had cross linking done fairly recently (my last op was exactly two weeks ago, but I've had 3 in the last year). The good news is that if you catch Keratoconus early on and do cross linking then you recover from the op faster and the chances of success are boosted. It sounds like your ...