UK Keratoconus Self-Help and Support Association

Hi all, Not been on for years still have KC in one eye, transplant to the other. Got my newsletter today thank you, it contained some interesting articles. Just wondered if the group is planning a facebook group or any social media presence? Would be easier to keep up to date with the good work you ...

I would be grateful for any tips/hints people have for putting in Scleral lenses. My vision is good with them in, but have only managed to get them in properly twice since I got sclerals a few months ago (currently wearing piggy backs). The bit I struggle with is keeping the liquid in, no matter how...

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What would be your dream job??

Hi Jennie, Not sure about the pain, but when I was fitted with piggy backs, after wearing soft lenses for a few years, I struggled really badly with having good vision, and the whole light thing. I was struggling to go out, cos I couldn't cope with it. My optician checked my lenses and it was nothin...

I am severe, but I believe lifes what u make it. It is difficult with KC, but u just have to function as best u can with the vision u have. Its the most frustrating thing in the world when u lose/break a lenses and are housebound until u can source a new one, but I just enjoy the break from work!! I...

I read flaxseed oil and lutein can be good for eyes and KC, tried them for awhile. Flaxseed oil made me feel ill! not sure about the lutein, may be worth a try!

I get really bad light sensitivity since i started piggy backing. I find the flash on cameras intolerable, so I always have my eyes shut on photos!! It is quite painful too if you suddenly have to contend with a bright light. Summer is a pain with KC, what with light sensitivity and hayfever! Just a...

Hi Sweet. My opthamologist told me there was no reason why they couldn't go in the same pot, but like you its so much easier to find and get out of seperate pots! Also, I keep them seperate as I was abit worried about infections or dirt passing from lenses to lenses in the pot - might just be being ...

Hi Pat, I have been wearing piggy backs successfully for a few months now. I was told to use only solution meant for soft lens on my RGPs as if you use the stuff just for hard lenses it can damage the soft lenses! I use opti-free express no rub solution on both lenses and I have had no problems with...

Hi, You will be fine, I wear piggy backs and wear them from 7am till 10pm at earliest every day and do not experience any problems. Its not that easy getting a good pair though! I have tried hundreds of lenses before I found some that suited me, spent hours in the hospital waiting rooms, lenses in, ...