UK Keratoconus Self-Help and Support Association

Thanks Alison Yes its good news about baby no 2 just hope things goes fine this time and my eyes don't deteriorate too much. The specialist is just going to have to do the intacs procedure after my baby is born. Have to just be prepared for as you say his comments however, it may be a blessing the b...

Thanks a millon Gareth, just going to use some time to gather information about the Intacs treatment I have been recommended.

Hope you are well and happy

Lynne

Anyone got a contact number and hospital for David Jory in London or even better anyone a contact centre for Keratoconus Centre in Liverpool

Thanks

Lynne

Hi Guys You may remember I was having some problems with my lenses around May this year after finding myself pregnant. A lot has happened since, I miscarried the baby and so decided I should go get my eyes reviewed by a specialist. I had an appointment in August 06 this year with a specialist in the...

Just been for assessment on my KC, found I have it in both eyes not only one. Dr Dya at East Grinstead has recommended intacs treatment for my left eye, but said as it it moderate/bordering severe i should have it done not to prevent or put off possible corneal graft later. Has anyone had this treat...

I just wondered if anyone felt the same way about raising awareness of Keratoconus. I have never seen any programmes on TV regarding our disease or at any time seen any feature on breakfast TV or any articles in the paper. Does anyone feel the same way about trying to increase awareness of our issue...

Hi Trace Yes don't lose faith these things are sent to try us. I was miserable to a depressed point about a couple of months ago, think everything just got on top of me, with losing the baby etc and my eyes not being top ( only recently got a new RGP lens to work (Rose K)). Its reassuring for me to ...

Just thought I would have a chat with you, did your KC get worse with your pregnancy and have you got it in both eyes... you poor sole, I know how frustrating it can be, I have it only in my left eye but that is bad enough. I was pregnant in April and my KC started worsening in my bad eye and in the...

Lesley Did you get sorted with a new lens. I was pregnant but unfortunately lost the baby and now have got sorted with another lens. I am going to have an assessment at the East Grinstead eye hospital to see if I would be suitable for Intacs or CR3. Think intacs might be out as the pregnancy changed...

Vicky Thanks for your reply its reassuring to know Dr Dya is good and spends the time with people. Is the 3 hour assessment tiring or is it ok Did Intacs work for you,and how is your vision now, I don't think I would be suitable as my KC seems to be still progressing and now that I lost the baby am ...