UK Keratoconus Self-Help and Support Association

I've been using breathing techniques for my asthma for over 30 years and was never told this would be a problem when I had my grafts done over 25 years ago and nothing has been said since. The things that cause problems with our eyes post graft includes anything that rapidly increases the eye pressu...

Many people post CXL wear soft lenses designed for KC, so this may help, I haven't had CXL but 25 years post graft and my transition from RGP to soft lenses has made night driving far easier. One thing I have noticed recently is that driving someone else's car was much better. After some reading up ...

Having had the condition for nearly 30 years now which includes corneal transpalnt in each eye 25 years ago and a major wobble in the transplants 10 years ago the condition has become a part of my normal living and generally unless there is a problem the only time I think of the conditon is when I w...

From my understanding these products come under strict regulations as this product is used for cleaning a medical device (a contact lens) and as such they should have on the packaging the btach number, shelf life and when to use the product by once opened. As you say there is no such infrmation you ...

In most cases once we find a lens that works, there are relatively few issues but as with any progressive conditions, we are all different so very hard to generalise. Firstly regarding work, make sure your supervisor, HR and company occupational health (in some places this is also HR) are aware you ...

The problem with any support group site is that the people who visit and post most are broadly speaking those who are new and / or experiencing problems with the condition they require support for. You don't often get people who are coping well making regular posts so unfortunatly the psost on suppo...

I meant to post tis last month, but a combination of holiday and business travel meant I had next to no access to the forum. July 2014 was the 25th anniversary since I had the corneal transplant performed on my right eye and I am pleased to say so far so good, the transplant is still in good shape w...

Unfortuantly the NHS system is still a bit of a post code lottery and I could go in to the politics of how this has come about through successive governments, but that would be a breach of the forum rules :twisted: Basically you need to be persistant and give a detailed explanation of what the issue...

RGP lenses are the prefferd choice by the NHS for the following rasons; Easy to make Been around for a long toime There are quite a few manufacturers of these lenses, so they are cheap for the NHS to buy Fitting kits can be reused Optometrists learning to treat KC are predominantly trained only in h...

The reason the genitic component is hard to analys is that it appears that about half a dozen genes need to come together that have a specific defect. Where it has been found that KC is heriditory is where the familly group is genetically very similar such as popoulation groups that intermarry over ...