UK Keratoconus Self-Help and Support Association

Just had letter from hospital regarding my appointment to see lens specialist this month...they have very kindly cancelled this one and made another appointment in November, so thats a whole 5 months since last saw them.......dont you just love NHS bureaucracy. I have contacted Liverpool, where i se...

liphook, I too recently became intolerant of RGP's but since being on antihistamines much of the tolerance has come back. I am being treated for dry eye. Secondly changing lens type may help, the design of my RGP lenses has changed slightly since the ontolerance they have helped a lot and I have tr...

Hey Rosemary Have tried piggybacking but was no good, also was told that the scleral are no good for left eye either. Wrexham are trying a new scleral on right eye but it hurts to wear, problem is getting to see the specialist as the hospital control the appointments and i been waiting 4 months for ...

Hi Lynn The refractive surgery reduced the astigmatism a lot but still a problem, the hospital have tried a few lenses, tried a standard lens to no avail, also one which had a hard centre and a soft outer, and i think a torrik? - it turns on the eye to try to find a fit,there were a few more but can...

Hi All I have not been on here for ages, but recent events have moved me to return to the site to look around once again. Ill keep this brief! When i was 11 i was diagnosed with KC Age 22 Had graft on right Eye Age 26 Graft on Left Eye Age 29 Refractive surgery on left eye The right eye operation we...

I have found out that Mr Nelson does have a private clininic on the Wirral somewhere, but it will cost a lot to see him, its £15 just for an appointment and a lot more for any modifications that need doing. As regards the hospital, they are pretty useless really, when Mr Nelson left they did bring ...

Hi All I am a KC sufferer and have had both eyes grafted over last 10 years, one has been successful the other has not, so at present i only have 1 eye i can use. My problem is that the contact lens i had for that eye has been broken and the specialist i used to see in the Wrexham area, MR R K Neslo...