UK Keratoconus Self-Help and Support Association

I popped into my local Boots The lady mentioned but the drive safe glasses which reduce glare/streakinge. I told her I had KC , she said it would help a little. Anyone have any positive or negative experiences with these??

Thanks
irfan

hi there

I have intacs in left eye. Can I still have an ICL inserted? Do you still have to wear contact lenses?

I sometimes use Boston Rewetting drops. They help provide some comfort if the lens is irritating. Also I've been through quite a few eye drops and now been using Clinitas p/f vials and they have worked really well.

Thanks for the replies. Lia, did you find a difference with the boots solution compared to the boston brand. I noticed at my local hospital that they were using irripod irrigation solution to rinse the lens. They come in 20ml vials. Theyd be handy to carry round if need be. Anyone ever tried these? ...

Hi Lia Just wanted to provide a quick update from hospital. The optom told me this is a common problem with 14 mm rose xl lens, They form a very tight seal and a lot of people have difficulty removing them. She also told me it is a common issue with hybrid lens. I tried an 18 mm scleral lens which w...

Hello I am just doing some reading round about maintaining RGP lens. What brand of products do you use? Is there a noticeable difference between p/f saline and standard saline. Do you use an enzymatic cleaner and do you think it makes a difference compared to a regular daily cleaner. Do you prefer t...

Haha the premises I'd like to attend is on that list. I have one lens which is very stable and its a rose k one. Surely most community practices would have access to rose k lens

I am currently under Manchester royal eye hospital but I simply feel as if after numerous attempts and fittings I have made no progress with getting a suitable contact lens, I want to move to a keratoconus friendly community practice. However I am a little worried that the technology and expertise m...

I also travelled to LA to have intacs and c3r. The intacs have made fitting very difficult.

Brief history Diagnosed: SEPT 2010 RIGHT CXL: May 2013 Left: C3r intacs Sept 2014 I had to wait 6 months to be able to start fitting process for left eye. First tried to fit rgp but bubbles kept forming underneath lens. They switched to ROSE K XL RGP LENS. A few questions: 1) Hosp gave me a plunger ...