UK Keratoconus Self-Help and Support Association

Sorry for the delay in the update. On Monday evening I went to see the doctor for a follow-up visit for my scleral lens. Since my last appointment last Wednesday, my directions were to wear the lens for as long as I felt comfortable each day. They wanted to see how my eye would handle longer duratio...

Hi Nick,

Here's wishing you a fast an safe recovery.

As far as the potential for vision improvement from CXL goes, if it were to happen does it happen in the first 6 months or they furstv12 months?

Here is today's update: I put the lens in my eye at around 10:45am - a bit later than I had hoped, but I got distracted and almost forgot to put it in! The lens experience today was good. No burning or stinging and no cloudiness. Periodically throughout the day I would become a little lens aware, mo...

Good luck with your follow-up Claire. I hope CXL is resoundingly successful for you! It's great that you are getting the word out about KC. Most people are completely unaware of it. I think given relatively new technology like CXL that if there were more awareness people would seek medical help soon...

Today I put my lens in around 10:30am - This time using saline solution instead of the conditioning solution! I immediately felt a huge difference: No burning/stinging sensation for starters. In addition, I didn't notice any fogging after about an hour or two of wear. My doctor's appointment was at ...

Hi Claire, Thank-you for your encouraging words. You are so right, it's so easy to become impatient. Unfortunately things do take a long time to heal with the cornea. I should know this from my transplant experience, but it's human nature to want things to happen quickly. Here in the US, the doctors...

I was back at the doctor's today. Everything looked back to normal thankfully! Apparently after a lot of discussion and consultation, the powers that be have concluded that the reason there were infiltrates in my eye was most likely due to an immune response because of a dirty lens. So the plan is f...

I had a 5:40pm appointment today, so I put in my lens at around 11:00am to make sure I got at least six hours of wear in. About two hours into wear, I started noticing a bit of a haze. So I took out the lens cleaned it and popped it back it. No luck! Still had haze. In addition, while the lens was e...

Here's an update on my scleral lens experience: I went to the doctor's today to pick up my new lens. The process was quite smooth and simple. First up was instruction on inserting and removing the scleral lens using a couple of different plungers. One is a big orange plunger for inserting the lens, ...

I'm in the process of getting fitted for a Scleral lens on my left eye and I thought I'd document my experience on getting these lenses fit in this thread in the hopes that others might find it useful. Please let me know if you have any questions and I will try and answer them My left eye had CXL pe...