UK Keratoconus Self-Help and Support Association

The scans look very stable between 5 months and 10 months. Remember that each scan has a margin of error, so you could literally do one scan after another and you'd get slightly different results.

I concur with the comments above regarding the Snellen chart. Reading the 20/20 line is no good if there are multiple images of what you're reading! If you have to read from a computer like that all day long, then that's a huge problem. I think this is something that a lot of ophthalmologists and op...

Hi James, Did the CXL improve your vision, allow better chance of fitting a lens, is the procedure painful? I've got my appointment on sunday really positive about it so hopefully I can get at least one of not both eyes sorted(left is worse). In the past I've had general comfort issues not able to ...

The way I think of it is that keratoconus is the disease which causes the cornea to weaken and become thinner. It's this which causes the cornea to bulge out, and it's effectively that 'bulge' which is the astigmatism. Most people who have astigmatisms have a 'regular astigmatism' (where it's symmet...

I'm just looking at different options at the moment. None of them are perfect, but I think I'll have to have something done. PRK might be one way to go.

Hello, I'm new to the group and have been very reassured by reading many of the posts that my case although annoying and frustrating is not uncommon. I have been attending and eye hospital in the south east england for 3 years, after trialing more than 10 different lens types I have still had no lu...

Pauly wrote:Did you have epi on or epi off cxl. Did you do both eyes at once?

This was epi-off, and I had waited 3 months before having the other eye done.

I can't fully remember how blurred my vision was after 1 month to be completely honest with you! But yes, I would have thought that would be possible because it takes a long while for your cornea to settle down, and I do know that often the topography scans can show the effects of KC actually gettin...

Hi there, It took 3 months after the CXL for my vision to return back to pre-CXL levels, so you've still got some time to go yet. Also, in many people the KC can continue to progress for a month after the CXL before it begins to 'kick in'. I wouldn't worry. Wait until your 3 month check-up and you s...

It's been around 18 months since keratoconus entered my life, and since then, I haven't personally gone a single day without thinking about it. Every time I see something that's not 'right' i.e. it could be glare from lighting or double vision on text, I'm covering one eye up and seeing how it comp...