UK Keratoconus Self-Help and Support Association

Hi Donna, I can only reiterate what has been said already - all very sound advice. The wash/shower first thing works best for me. This gives your eyes some time to get accustomed to the light and then the lenses go in better. Also, clearing away the "gunk" from the night before alleviates ...

Sami, I was diagnosed with KC at an early age, having worn glasses from 4 years old I started with rigid gas permable contacts (rgps) at the age of 12 - I am now 28. I honestly do believe that the contacts have helped to stem the progression of KC so, personally I would suggest your son to wear some...

Hi All, Thanks to everyone who viewed and also responded to my questions. I think that I got a little panicky after hearing what the doctors at the eye clinic said on a routine checkup. I have since spoken with the opthalmist and she confirmed that there is no need to change to the scleral lenses. I...

Hiyah All, I have been wearing glasses since the age of 4 and was diagnosed with KC in my early teens; at 12 I was wearing RGPs in both eyes and have been using them since. After a couple of eye infections over the last two years (and thus not being able to wear the contacts) my opthalmist is consid...

Hi Kim, Glad to hear that you are finally getting things sorted out. There are always going to be some setbacks, you just need to hang in there and get through them as best you can. I am sure that things will straighten themselves out eventually. I am still so surprised/amazed to hear that there are...

Hi I have been wearing GP lenses for the last 15 years or so (I am 27) and have found that a similar condition has developed. I normally wear these for about 14 hours a day (more if I go out clubbing!) with no adverse reactions. Over the last few years, my eyes have become more photophobic. Strobe l...