UK Keratoconus Self-Help and Support Association

Hi Suzanne, i am glad that your graft was successful and that you feel it has benefitted you a lot. I guess I am lucky at the moment that i can wear contact lenses for quite a while and dont suffer much irritation. How come your lens tolerance was so low. was it due to the steepness of your cornea? x

[quote="zeke"]Hi Lisa, I am from from Lincoln. I have the "K" in both eyes . Been in contacts for over 15yrs. Fully understand how you feel, other peoples reactions and poor understanding,makes it very difficult at times. Sorry you have had problems,buts here is good source of in...

Do either of you ever get eye redness towards the end of the day when you wear your contacts that long? or are they generally ok? sometimes my eyes tend to feel dry later on in the night. I was prescribed some glasses a couple years ago but they were of no use to me, although I may go and get re tes...

Hello, yeah mine go in as soon as I wake up and last thing before bed. I am gonna try and reduce the wear though sometimes and see how it goes, although I can barely see a thing without. I am in piggybacks also

Hi Suzanne, good to hear from you and I hope your graft went ok. I had a few major problems with my eyes a couple years ago where my eyes were constantly red and watering. No dcotor could seem to tell me why this was happening, and I was eventually put on the graft waiting list. However, I was convi...

thank you. i will try this out. I manage to wear them ok for quite a while, although sometimes my eyes are tired and red, but not often. I have been reading up on different lenses lately and have seen some info on scleral lenses. do many people with KC wear these lenses and are they any good? I have...

How long do people wear there contact lenses for per day? I am averaging about 15 hours but suggestions to take them out to give my eyes a break dont help as i cant see a thing without them!

Hi, Im Lisa, I am 28 years old from Lincoln. I was diagnosed with KC at the age of 17 and have had various problems with lens intolerance over the years. I have currently found some lenses that are very comfortable. I have been told by my doctor that my KC is advanced and I have scarring on my corne...