UK Keratoconus Self-Help and Support Association

ungrafted legally blind eye going on these definitions is both severe and advanced but I suspect that is no shock to anyone, including myself According to who international standards you are not legally blind in just one eye, In order to be considered legally blind, someone must have vision of 20/2...

I had very similar experience with my right eye, it was to too sensitive wear, but left eye was able to wear contact lenses for a short while before it went. it took 12 months of investigation from three different eye departments to discover I had RCD. This was the underlining cause of the problem, ...

I spent over 14 months being told my sight problems were in my head, because my consultant missed an important remark from the nero ophthalmologist. Then the head ophthalmologist refused to redo transplant because physical there was nothing wrong. When i ask for write up of what happened for a secon...

Hi all and thanks for your replies, I think this really depends on the clinic/surgeon. There are very serious surgeons in private clinics that won't advise you to do a treatment you don't need. at the end of the day, it comes down to money and funding research. One thing , you will have to do the c...

News has been released that British scientists are planning to use embryonic stem cells to cure age related macular degeneration, a common form of blindness. They are hoping to have the first patients receive test treatments within five years. This could be a major improvement in the methods of trea...

private doctors scare me, because if you got the money you can get anything whether you need it or not

ive been diagnosed with Cone rod dystrophie and i have Keratoconus. They said this caused the rejection to happen,

Are there any support groups which have Keratoconus with Cone rod dystrophies?

Hi all, I was diagnosed with keratoconus when I was 16. I'm 27 now and literally have tried everything. My doctor last week booked me in to have a corneal transplant, only for my left eye. My right eye had the disease but not as severe. I have no vision in my left eye, but I am confused, unsure and...

after my graph rejection it has made me very cynical about what is written about the treatment for Keratoconus, There is only one guarantee with Keratoconus treatment that is there is no guarantees it will work or improve. it could work and be happy, but you need a follow up with your private doctor...

its starting to go white now , been penciled in for another one next month