UK Keratoconus Self-Help and Support Association

Hi Well my first day wearing a patch went pretty well. I cant tolerate the sun now and so it was a huge help despite weird looks i have been receiving from the public all day. I suppose it don't help that Cornwall is famous for it's piracy! The kid's seem entertained by me though. Both balance and d...

Hello! Please wish your daughter all the best. I really do appreciate how irritated she must feel at the moment. Thank you for your knowledge and understanding! Will definitely try out some lubricants. I'm also going to try wearing a black patch today. Having one good eye and one bad eye open togeth...

Hi Anne! Thanks for your advise. I managed to get into the eye casualty this p.m. and yes was diagnosed with acute hydrops. I've been given a couple of types of drops to reduce the pressure in my eyes. They say my left is too weak to cope with the pressure now which has caused the issue. I've just t...

Hi everyone! Pretty scared this a.m. I woke up this morning and tried to put my scerols in. I thought they were greasy as there was a huge cloud in them. Tried cleaning them again twice, but the same thing happened. Under closer inspection although i can't actually see properly i think the scar over...

Hello! I also get that throbbing pain behind the eyes! I have a very large scar over my left cornea that lets in the light and causes this pain just before getting a migraine which generally lasts about four days where in this time i have to support my weight on the walls just to get to the lav. Whe...

Without a doubt! Everybody is capable of something and doing it well! Some of the world best musicians are blind, whether they sing, play instruments or both and people in distant places that carve perfect statutes from hard materials!

Hi There!!! I know exactly what you are going through. I had all the same issues whilst i was at school and was accused of laziness because nobody could understand why KC was not helped with glasses. In my opinion spectacles do not work for KC they just magnify the problem associated with it such as...

Hello! I have a large scar over my left pupil which really scatters the light and causes a lot of uncomfort. Unfortunately the light always seem to get over the frames of sunglasses so also wear a thick rimmed hat over the top. I am a sclero lens wearer and my eyes can become dry using them for long...

Hello! My opinion on this question is we are all very different individuals and KC effects us all in individual ways. Therefore managing the effects of KC will vary from individual to individual. I was diagnosed with KC at 14 and have now been managing KC with Scleral contact lenses for twelve years...

Hello Everyone! Iv'e never used a forum before so i'm not sure how to use it properly yet. Just wanted to introduce myself as Tristan Holmes. I am twenty six and was diagnosed with KC at fourteen and have been using scleral lenses approx a month or two after diagnosis. I have joined this forum becau...