UK Keratoconus Self-Help and Support Association

Just to say it will get better. I was extremely anxious when I first had my graft done and as time goes on you will worry less. Just make sure that you talk to friends and colleagues, I have printed some of the leaflets from the website to show to people to give a simple explanation. I was in my 20s...

I see that Keratoconus Australia have a Facebook page. I am not sure whether it would benefit the group or not as it might double up or confuse the brilliant discuussion boards? However, a link might be useful and especially supportive to younger people with KC?

Have just received a number of Christmas gift catalogues from charities where you can donate towards drinking water, goats etc etc. I know last year Mike Oliver sent a lovely letter asking for any donations to KC group, think it was the Autumn time, Just wondered if we might have a regular donation ...

Just a quick hello from to my fellow Midlands KCers! I live in Leamington Spa but still attend Radcliffe Eye Infirmary in Oxford as lived there previously, although grew up in Warwickshire. Have been to Cov and Warks eye casualty and they were great! Hope you find the group as useful as me Caroline :)

Dear Sue I know that there is a travelodge on Broad Street (10 mins from venue) if you book early you can sometimes get a room for £25. I haven't stayed in this one but have stayed in other city centre ones which have been fine. Take a look at http://www.travelodge.co.uk I think that the location w...

Dear Sophie Glad all going well for you, this is my second Christmas post graft. Last year I had stitches etc, still managed to go out etc. Agree with Gareth enjoy yourself but take it steady!! You tend to know when eye is struggling with environmental factors, smoke etc, I was never without my Liqu...

The pain will pass but can't say when!! i would advise you to see your consultant as soon as possible, especially if you are in pain and due back at university. Although you have been to eye casualty they are often very busy and have limited time and you can have a proper chat with your consultant w...

Dear Dave

I was on the waiting list at Oxford for 6 months before I got my graft done under a general anaesthetic. The hospital had a waiting lists office which you could call to check progress, who were very helpful. They might have something similar in Manchester.
Good Luck
Caroline Dyer

Dear Sophie After much thought I had a left corneal graft last August. Although I have had KC for 10ish years and am now 29, I was lucky to get through my degree and PGCE course with a reasonable level of vision. Obviously it is different for everyone but I would suggest that you get it done when yo...

Happy to help with research, but not sure where to find visual acuity scores or what they are! Have had KC about 10 years but can try and track down details if you can provide information on how to get them!
Thank you