Search found 5 matches

by michaellpl
Sun 06 May 2012 7:33 pm
Forum: General Discussion Forum
Topic: My success
Replies: 5
Views: 4161

Re: My success

I had Xlinking adn actulally see worse after the procedure:( not that lucky I suppose
by michaellpl
Sun 01 Apr 2012 8:36 pm
Forum: General Discussion Forum
Topic: keraflex
Replies: 197
Views: 151479

Re: keraflex

one of the problems is that I believe there's a lot of customer data out there that Avedro and all of the other clinics apart from Cottbus are not sharing... And that is worrying because if they would get blockbuster results then it would be in their best interest to share it...
by michaellpl
Sat 31 Mar 2012 9:10 am
Forum: General Discussion Forum
Topic: To all who have joined this forum recently
Replies: 212
Views: 321649

Re: To all who have joined this forum recently

Hi, My name is Michael, I'm 27, now living in Poland and I was diagnosed with KC last year. Since the rapid progression scared the shit out of me I had Xlinking in november. From orbscans they tell me that you cant see the cone progressing but I can hardly believe that since the ghosting effect is g...
by michaellpl
Fri 30 Mar 2012 7:13 am
Forum: General Discussion Forum
Topic: keraflex
Replies: 197
Views: 151479

Re: keraflex

the problem is that in the study there are only two patients after 18 months... one thing I wonder is whether you can just keep keraflexing every 2 years if the KC comes back to the "bad state". If you could then great, I think costs will come down to the Xlinking level or maybe twice that...
by michaellpl
Thu 29 Mar 2012 6:43 pm
Forum: General Discussion Forum
Topic: keraflex
Replies: 197
Views: 151479

Re: keraflex

This is a great topic! I'm a patient with KC and I've been thinking about keraflex ever since I was diagnosed. I really hope we will see some long term results as for today they are not really clear. I don't know if this has been shared before but a recent study from a german clinic shows that even ...

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