UK Keratoconus Self-Help and Support Association

thanks Anne. i know of Keratoconus Australia and their site has a lot of information but so far not found any good forums so that my son can join and chat. i have sent him links to this site as really it doesnt matter which country you live in with the internet. general anaestetic brings the cost up...

has anyone or does anyone know of someone with KC who also has congenital nystagmus. question i have is ... how do you get the cxl done if you cant hold your eyes still. thanks.

in australia its going to cost my son $2000 per eye. he is very worried about the procedure as he also has congenital nystagmus and therefore can not hold his eyes still. so far the doctor has not told him how they plan to stop his eyes wobbling from side to side while they do the procedure. any inf...

my son had a bad time recently at opthamologists rooms. they couldnt get a good reading but he has congenital nystagmus as well as keratoconus. they said it was the uncontrollable movement of his eyes but that was in western australia. when he first found out he had KC he was in adelaide south austr...

hallo everyone, i need some help please. doctors in australia too busy to answer my questions mmm. anyway my son has keratoconus very badly in one eye and not so bad in the other but he also has congenital nystagmus. he is planning to have the corneal collagen crosslinking done soon. doctors here ha...