Search found 20 matches

by Rose
Sun 28 Oct 2012 11:20 am
Forum: General Discussion Forum
Topic: 48 hours without contacts in - How life is different
Replies: 9
Views: 2498

Re: 48 hours without contacts in - How life is different

Laura Well done first of all; what a fantastic mind set you have. I expect you know [but in case you don't] you can get some allowances in taking your A level exams. My son has KC and took his A levels in the summer. He got large papers and extra time in the exams. He did not like the large papers -...
by Rose
Tue 18 Sep 2012 8:31 pm
Forum: General Discussion Forum
Topic: 15 year old son newly diagnosed
Replies: 9
Views: 2931

Re: 15 year old son newly diagnosed

Hi My son was diagnosed 9 months ago when he was 17yrs old and about to sit A levels. So I was in your shoes not long ago. I spent hours researching on the net, time well spent. I would suggest you look into having crosslinking [CXL] which will halt the progress of the condition, not make it better ...
by Rose
Sun 16 Sep 2012 9:09 pm
Forum: General Discussion Forum
Topic: FOR ALL STUDENTS WITH KC
Replies: 2
Views: 1133

Re: FOR ALL STUDENTS WITH KC

Hi Penelope Yours is a very timely post. I only discovered that my son [with KC] could be entitled to DSA by someone else posting a couple of months ago. My son had his interview for DSA on Friday and the assessor was really helpful. All the items you mention were discussed with him as well as trave...
by Rose
Sun 16 Sep 2012 8:53 pm
Forum: General Discussion Forum
Topic: Cross Linking - my experience
Replies: 10
Views: 4939

Re: Cross Linking - my experience

Hi Nicky. There are many hard decisions to make about treatment but when I discussed having cross linking with my 18yr son who was diagnosed with KC last Christmas, his first response was that he wanted his 'good' eye done. It was not easy to find medics willing to treat an eye where the KC, in his ...
by Rose
Mon 20 Aug 2012 7:09 pm
Forum: General Discussion Forum
Topic: Reading
Replies: 4
Views: 1548

Re: Reading

Hi Space cadet
In your experience is someone with KC always recognised as 'disabled'. My son is going to uni next month, he has had both eyes treated with CXL. If he is registered within the uni as disabled; what benefits might he be entitled to?
Many thanks, Rose
by Rose
Mon 20 Aug 2012 4:56 pm
Forum: General Discussion Forum
Topic: Reading
Replies: 4
Views: 1548

Re: Reading

Hello Penelope Well done for getting to your second year. I can answer some of your questions and hopefully someone else can give some more answers. I use a keyboard kindle, which is still available. To turn pages you click on a button at the side/edge of the Kindle. It does save your place when you...
by Rose
Sun 19 Aug 2012 11:54 am
Forum: General Discussion Forum
Topic: Recent Diagonise.
Replies: 6
Views: 1540

Re: Recent Diagonise.

Hi Gabbie Please look at the post I made this morning called 'Good News'. My son was diagnosed eight months ago aged 17 years. I hope my post might give you some encouragement. Cross-linking is certainly worth serious consideration. Not available on the NHS yet though. Please keep posting or asking ...
by Rose
Sun 19 Aug 2012 10:33 am
Forum: General Discussion Forum
Topic: Good News!
Replies: 1
Views: 706

Good News!

Hello. :D Last Christmas my 17-year-old son was diagnosed with Keratoconus, although the consultant, for some reason, decided to only give us the name of conical cornea. She then went on to say I should not look it up on the Internet and worry myself. Fortunately I did go on to the Internet, discove...
by Rose
Tue 05 Jun 2012 8:26 am
Forum: General Discussion Forum
Topic: URGENT How we can make sure money goes to research into KC
Replies: 7
Views: 2523

Re: URGENT How we can make sure money goes to research into

Thank you Ann. I have completed this and will ask other family members to do so as well. :D
by Rose
Thu 10 May 2012 7:46 pm
Forum: General Discussion Forum
Topic: KC Contact lens specialists
Replies: 12
Views: 3395

Re: KC Contact lens specialists

Hi Liam. If I remember rightly I think that you have had CXL treatment - so I wonder if the person who did that could recommend a good optician experienced or specialising in KC. May be worth a try. :D

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