UK Keratoconus Self-Help and Support Association

I find that piggybacking seems to create more mucus than when I wore just RGPs, maybe that causes the clouding? I don't take my lens out until I go to bed so don't really notice what my vision is like then. My tear film make up is more mucus with less water and oil. So its not good to start off wit...

There are no restrictions for notifying the DVLA for KC. There is an option to tell them that you need glasses/contact lenses for driving, thats coded on to your licence. My lens fitter says that we shouldn't really be driving when we solely rely on lenses for vision. We have no back up because glas...

There is another factor to this problem. Unilateral and bilateral vision. A person with bilateral vision and KC has a much better chance of reducing the halo/glare/ghosting effects, and getting better visual acuity. This is because the brain as normal, superimposes the two images to make a better im...

You might be able to reduce ghosting or glare with contacts, depending on how bad your KC is. Generally, the answer is no as its within the cornea that the ghosting or glare occurs. Corneal grafting is the only way, by eliminating the visual distortion at its source.

I don't like the hospital lens fitting services. At my nearest eye hospital, they said that about 2% of all contact lens patients they see are Keratoconus related. So I feel they lack the experience of a unique condition per patient. They seem to think a 1 lens fits all solution. They tried me with ...

I think its something to do with reduced oxygen transference. The more lenses stacked, the more restrictive the oxygen to the cornea is.

Here is a link to my previous post which I posted my pentacam scans, taken about 1 year ago.

Pentacam Scans

Hi Gemma,

I'm not sure where in the world you live, but I believe that CXL is available on the NHS at St. Pauls Eye Hospital, Liverpool (Northwest Region) performed by Mr Batterbury. He may also perform Intacs procedures too.

That last paragraph has freaked me out! :( I'm just gonna wait until my hospital appointment and hope for the best :( thank you for the info on cross linking! It wasn't meant to freak you out. Basically, she was saying that when we get diagnosed. We really get no information on what happens and how...

Thanks - that's made me feel better! I got prescribed glasses (that are on their way!) as she noticed I had an astigmatism and was very midly short sighted. Ah so does the cross linking process actually stabilise it? It's not really affecting me much at the moment as my right eye is (currently) una...