UK Keratoconus Self-Help and Support Association

Has anyone on the forum experienced vomiting after having taken medication for Keracotonus and immunisuppressant drugs?

Thank you Alison for your positive and encouraging comments. I will get him to make contact with the agencies you recommend. what a pity the hospital department wasn't more helpful and able to provide this information.

Than you Sutts for your encouraging reply. The problem is our son can no longer work at his trade, joinery, which he has been in since leaving school at 16 yrs. It is all the working life he has known and now has to start from scratch at something, we don't know what, at the age of 35yrs. Who would ...

Thank you Gareth B Perhaps I did not explain fully, my son suffers many allergies including colophony which is in wood dust and may other household products. The workshop my son works in is also uses MDF which he is highly allergic to. This is the reason he takes the immunisuppressant drug. His work...

My 35 yr old single son had his corneal transplant done in Jan 2012 and still has his stitches in place. Some had to be replaced a few weeks ago as they had started to loosen. He has been on immunisuppressants and the usual eyedrops since the op. His employers "let him go" after the statut...

Hi, Paul Osbourne, in a reply to a query mentioned his cataract on a grafted cornea was due to steroid eye drops. Could I have more information on the likelyhood of this happening. My son who had a corneal transplant at the beginning of the year is using steroid drops constantly. Can this lead to mo...

Thank you Anne and Chris for your responses. We have the DLA form and it seems a rather daunting prospect but one which he will undertake. Applications to have mortgage & council tax breaks are in the process of being decided. It would appear everything is now done on-line or by telephone and in...

What now? My son has had his corneal transplant and thankfully now has some vision in his right eye. The op was carried out sooner than planned as his cornea split and had to be glued. The glue did not hold and the cornea was "melting", hence the op. The immunosuppressants seem to be doing...

Hello Optomist, I can so empathise with your situation, I too am a mum with a 34 yr old son with keracotonus and assocated eye problems who is a possible transplant patient. I feel so inadequate at supporting him, as an adult he feels it wrong to have to rely on his parents for help. At the moment h...

Thanks Alec, may I ask how old you are and how long you took the immunosuppressants before you noticed an improvement? How was your general health while taking cyclosporin? My son is having the pre treatment tests at the moment and would welcome news of other's experiences.