UK Keratoconus Self-Help and Support Association

Hi Chris Thank you for your reply.the consultants didn't seem too worry, though they didn't seem to take my concerns massively seriously either. That said my cornea was now too flat like a drum and hope my eye will now stretch a little. There was mention of months, though when I raised that I work i...

Hi everyone I had INTAC in my left eye yesterday at east grinstead. The procedure was pretty painless, however can't see anything out of my eye other than a blur like watercolours. I went for a checkup today and a man there who also had it done had already been able to see 20/20; I can't see a thing...

Hi I am just writing as I have been writing a blog about my own Keratoconus experiences and I wondered if it might be of use to anyone. I have only had it for 4 years but it has been a very eventful time, and I thought it might prove useful. http://keratoconusuk.wordpress.com/ Please let me know if ...

Hi I have literally just had cxl in left eye- no real pain as they did not remove the epithelium but rather made scratches in it which seems to help the healing. The only annoyance I suppose is my eyesight is wosein it at present but am told this is normal and will improve with time, definitely wort...

Thank you to everyone who has replied I really appreciate your posts. After chasing the NHS I have now successfully had my first op for cxl in my worse, left eye. I have had a week off work, my vision seems slightly worse than before in my left eye- is this normal? I am due to go abroad this weekend...

Hi I have kerataconus in both eyes. I have had it for 3 years; the most horrid years of my life. I am currently on a waiting list for INTACS. I have been waiting since Feb. I have coped OK until now, tried lenses for a year but they hurt and my hospital optitian told me it is the best they can do; s...

Hi I am 26 and was diagnosed 3 years ago. I have coped OK - not great - since this but recently this has gotten much worse and I find that my local NHS is no help in terms of providing guidance or assistance. I am on a waiting list for INTACS which has been 6 months now and lenses hurt me; I had a p...