UK Keratoconus Self-Help and Support Association

I was thinking to myself, apart from not having to worry about how to pay for say CXL, being a millionaire would make no difference. KC is sort of a level playing field in that regard. Only a little bit science fiction from me... There have already been experimental patients who have had a (small) n...

Bit of a weird topic but I'm interested in your thoughts. I was thinking, if I was a billionaire and money was no object, what would I do to treat my Keratoconus. If you could get any treatment or see any consultant/expert - what would you do? It has to be within the realm of possibility, no replaci...

I guess I'll show my ignorance here but can someone explain how cross linking affects the shape of the cornea? From what I understand, cross-linking is merely administering riboflavin and UV light. I understand that it locks things in place but I'm not sure why the cornea shape improves. I always th...

Can one just turn up to this or do you need to pre-register?

From what I've read it's not a good idea to rub your eyes if you have KC, so I'm trying my best not to. However, I do find and have been told by friends that I do seem to rub my eyes a lot. I don't know if my eyes are dry or if they are too "wet" but I often find myself wanting to rub my e...

Hello all, Thanks for your kind responses, I had forgotten I had posted and didn't receive any email email notifications, so it totally slipped my mind. Thanks again. I'm still awaiting an appointment, though I did get a letter asking me if I'd had an appointment already and if I hadn't if I'd still...

Hello all, I've been having trouble with my eyesight, more so in my left eye than my right. Thinking I just needed glasses, I went to the optician who advised that I may have Keratoconus and glasses would be of no use to me (devastated as I had picked out some nice frames already!). A referral was m...