UK Keratoconus Self-Help and Support Association

Thanks Jay, Ill keep you posted. I dont expect miracles and I have been told that it could take up to a year to settle. I am aware that this treatment will not cure my keratoconus but will halt it and give a foundation for further treatment hopefully. Nothing ventured, nothing gained! it would be ni...

Ive used Opticrom or Boots own with my RGP's for years. Dont use them with soft lenses if you piggy back tho, it makes them cloudy. I leave the lens out for 20 mins after putting the drops in. works a treat for me. This was recommended by my lens man at Moorfields.

Treatment update as promised. My surgeon decided to treat one eye at a time and also to remove the epithelium. Left eye treated on 8th June. All went wel, took about 1 1/2 hours and was totally painless - until the anesthetic wore off! Ouch. Couldnt see much out of the eye until day 3 as my eyelid w...

Jay, I would just like to ask you whether your C3R treatment has had any affect on light sensitivity or ghosting? Also did you have to leave your lens out of the treated eye for a lengthy period? Im just wondering that if im lucky enough for this treatment to regress my cone at all, how im going to ...

I use piggy backing sometimes under my rgp's and i get the same problem with cloudiness. ive found by putting a few drops or a lot of drops of saline in my eye while ive got my lenses in can work. (i use bauch and lomb sensitive eyes or nick some of my amidose meant for my sclerals). If that doesnt ...

Thank you both for that information. The link you posted fits what he told me. I should have asked him to write it down for me - not surprising i couldnt find anything about it before!

Ken Pullum fits my lenses privately. I also see him at Moorfields and then found his private practice. Well worth the trip to his place in Hertford. He has made me the most comfy lenses ive ever had. If you lose or break one, a new one can be made and posted out to you in a matter of days not months...

I thought that was bad enough. They said the treatment was £1,000 - i didnt realise it was per eye! I read something recently from austrialian news dot com where they are trialing the treatment. the equipment costs about $2500 and the B2 $1000, enough for 60 patients. Exciting prospect for KC suf...

David Jory in Harley Street, London Clinic for Refractive Surgery (LCRS) is doing it. £1000 per eye for the C3R. He made me fully aware that the C3R was to thicken and strengthen the cornea and halt the progression. He hasnt promised anything other than that and will reassess regarding the lens i...

Now im letting myself get a bit excited having read your account. Im having mine done in London - ive spent about 3 years looking into c3r - Ive done a lot of homework on the subject. The eye man who will be doing the treatment decided on the the usa route having consulted Switzerland and the USA - ...