UK Keratoconus Self-Help and Support Association

Hello Helen, Sorry to hear about your INTAC failure. I also had an INTAC failure. I had a single INTAC inserted into the superior of my right cornea a couple of years ago. My vision didn't improve even though it altered the profile of my cornea. The main problem was with my night vision with me expe...

Ttuf wrote:

So if keraflex does become available would patients still need contact lenses after they have had that treatment?

My consultant said if I had the Keraflex I would still maybe need to wear contact lens or glasses afterwards.

anyway i want to ask you if you know do crosslinking make me not candidate for keraflex procedure Do you mean if you've already had C3R? This description of the Keraflex KXL procedure indicates that the C3R segment of KXL is performed after the Keraflex. http://www.nkcf.org/en/research/research-upd...

Your entire body consists of collagen to some degree or another. If KC was linked to that you'd expect KC folk to have a massively greater percentage of connective tissue disorders in relation to the general population, (or people with connective tissue disorders to have a far greater incidence of K...

Hello, I have a little more information on the KXL procedure. I've just had a corneal graft in my right eye to correct my KC. During my pre-op my consultant informed me that he thought I would be a perfect candidate for the Keraflex procedure. This was something to do with the integrity of my cornea...

Hi everyone. I usually only lurk here so I hope its not to cheeky if I ask for some advice. In March I had an INTAC inserted into my right cornea in which I have severe KC. The operation was the type were only a single INTAC is fitted; in my case in the inferior cornea. The operation and post-op was...

Cheers Eddie will do. I'm curious as to how it all works.
D.

Hi everyone, I thought I’d share with you my recent experiences regarding my K.C. My last post here several months ago described a confusing consultation I had with a rather unhelpful consultant; the only useful information I came away with was a name of an INTAC specialist to whom I then got a refe...

Hello everyone. This is a long post so please move on if you wish, though I've tried to abbreviate it a little. I just thought I'd share my recent experiences. Briefly, after 12ish years of stability my KC began to progress in my left (good) eye again and so after much ado I recently got myself into...

Name: David Age: 34 Location: York Diagnosed: 18 years ago, though I'd had it for 3 years prior to that. Worst eye: Well it was my right but now I'm not so sure. Surgery: Not yet. Saving up. Hardest thing about having KC: I would have to say my poor nightvision and the halo rings and 'smudged light ...