UK Keratoconus Self-Help and Support Association

Val I wonder if any of the range of daylight lamps would help you at work (and maybe at home too) I use "daylight" bulbs all the time as it replicates natural daylight. They are readily available from the RNIB or most craft shops as people also use them for handicrafts. There is a great ra...

Matthew you are absolutely right about it taking forever to get assisstive technology in the Civil Service. I work for Jobcentreplus in a benefit processing centre so I have also experienced horrendous delays in getting equipment. I used to use software called Vista for over 14 years. It was great b...

My mother has just had a cataract operation and we were talking today about eyes, She asked me if I were to get cataracts in later years (I am 58 ) how would I go on because of my KC. In my case it is only quite mild and unlikely to develop further. Does anyone know the answer and I wonder how anyon...

My optician picked up on what he thought was KC on my annual eyetest. After going through the different stages to hospital referral I was toldI had mild KC last year at the age of 57. I queried it because I understood it happened mostly to teenagers and young people. The reply I got was that I have ...

Thanks Lynn. I will take your advice. You really know your stuff. My mild KC was indeed diagnosed through the topography test. The consultant told me on Tuesday he had discussed my test result with colleagues to reach a conclusion. When I had the test they told me they couldn't get a reading because...

Thank you all for your replies and especially Lynn for your explanation. It does make me see things in a different light and I feel a lot better now in that I am no longer angry. Thinking it through I can understand things have improved over the years. What has sprung to mind is my local optician te...

I have not posted to the forum for some time. Last summer my optician picked up on changes in my eyes and mentionned the word Keratoconus. He referred me to the local hospital and I spent a long time on various waiting lists working my way through a tiered system. Some professionals said yes I have ...

Thank you Anne K for getting in touch with me the other night and for the chat. My appointment is tomorrow in Manchester. After a week reading all the information and threads on this forum I feel a lot more reassured and less frightened now about what lies ahead. I have complied my list of questions...

I work for the DWP processing incapacity benefit claims. For some time now I have had a large 20 inch monitor and a CCTV system to read documents on my screen. I also use a product called Supernova which is a magnifier but also has so many other features like changing colours, It can be set to provi...

Thank you all for your comments. It helps such a lot to know others have been before me on this road. I will keep logging into this forum because I can see already that people understand how I feel and that I am not alone with this fear. I had the topography test about 3 weeks ago but they were unab...