UK Keratoconus Self-Help and Support Association

Hiya Lyn this is a very good thing that you are doing and hopefully the outcome will be good !. What I find annoying with the system is : I have not been legal to drive for over 3 years, I use a cane , am contact lens intolerant, have ghosting and glare and night time issues etc. Have not had a stab...

Hello, Flicking through the threads I saw this. (wasting time at work ) I have pm'd you sky. I started Dianette when I was 18, was diagnosed with KC when I was 19. and in both eyes 4 years ago. Been off it now for 2 years, and I turn 30 on Monday. I never even new it was a side affect maybe my KC ha...

Thank you both, for your kind words and advice !
nic
x

Hi all, I hope this message finds you all well ! just a quick question if anyone can help me. I fell down the stairs at night in Cardiff train station :oops: so decided to have a cane. I have great trouble seeing anything at night what with glare and kaleidoscopic lights etc. Anyway I have training ...

I got one and opened it in work >< ><
..me waits for the sack lol

nicola
:O)

Hiya Liam
My graft shifted last year and I had the graft cracked open and moved back and re stitched again. I can not remember if I had stitches in it at the time though sorry.
lol sorry I can not be any more help.
nicola

Hiya I had my first graft done 17 months agoim 28 now, and the same as you classed as a success despite various rejection episodes. and like you I have never been able to see out of it. there is so much scarring on the cornea and the surface is so ridged, that they cant correct the vision. im having...

Hiya :O)

My KC was diagnosed in my right eye 9 years or so ago. and diagnosed in my left 3 ish years ago.

nicola

I had a flu jab last year, within a week or so I had quite a bad rejection episode.cant say if it was the flu jab or not.

BUT

im still going to have another flu jab this year.

nicola

Thanks guys :O)
nicola