Search found 308 matches

by longhoc
Sun 06 May 2018 11:24 am
Forum: General Discussion Forum
Topic: Next London meeting on 17th March
Replies: 7
Views: 1385

Re: Next London meeting on 17th March

We encourage interested members to attend the AGM in person where an agenda is issued at the meeting. There is always time for questions and any member can ask anything they wish and also listen to the people who speak -- either other members or the committee. As this is a public meeting, we don't k...
by longhoc
Thu 19 Jun 2014 11:25 am
Forum: General Discussion Forum
Topic: Welwyn Garden City's Mill Green Golf Club Fundraising
Replies: 0
Views: 891

Welwyn Garden City's Mill Green Golf Club Fundraising

Welwyn Garden City's Mill Green Golf Club is holding a fundraising event for charities, including us here at the UK Keratoconus Self-Help and Support Association. There will be prizes for the 1st and 2nd place visiting teams and 1st place Mill Green (MG)* team. Cost is £40 per person (£35 for MG mem...
by longhoc
Sat 14 Jun 2014 12:56 pm
Forum: General Discussion Forum
Topic: Amy Musto's Skydive Pictures 3 of 3
Replies: 0
Views: 987

Amy Musto's Skydive Pictures 3 of 3

Amy 3.jpg
(75.12 KiB) Not downloaded yet
by longhoc
Sat 14 Jun 2014 12:55 pm
Forum: General Discussion Forum
Topic: Amy Musto's Skydive Pictures 2 of 3
Replies: 0
Views: 864

Amy Musto's Skydive Pictures 2 of 3

Amy 2.jpg
(77.48 KiB) Not downloaded yet
by longhoc
Sat 14 Jun 2014 12:54 pm
Forum: General Discussion Forum
Topic: Amy Musto's Skydive Pictures 1 of 3
Replies: 0
Views: 921

Amy Musto's Skydive Pictures 1 of 3

As some of you may know, member Amy Musto has done an amazing feat for us to raise money -- a skydive. It makes me feel a right coward ! We can't thank Amy and her generous employer Barbican Insurance enough for her and their support, kindness and generosity. Here's a flavour of Amy's achievement: A...
by longhoc
Sat 14 Jun 2014 12:49 pm
Forum: General Discussion Forum
Topic: Fundraising Sky Dive
Replies: 8
Views: 2195

Re: Fundraising Sky Dive

Hi space_cadet The funds raised will go into the general reserve -- which is there to cover our operating expenses, but if we get enough together to ensure we have a bit of financial security, we could consider setting up special purpose projects or any initiative which members think is a good idea ...
by longhoc
Sat 07 Jun 2014 7:58 am
Forum: General Discussion Forum
Topic: Eye Muscle Imbalances / Convergence Insufficiency
Replies: 1
Views: 1037

Re: Eye Muscle Imbalances / Convergence Insufficiency

Hi James My experience of this is that, following my graft (after which for the first time in a long while I was actually able to see something vaguely useful out of my left eye) it took an awfully long time for my brain to get used to the fact that it was worthwhile processing the new information c...
by longhoc
Sun 30 Mar 2014 9:04 am
Forum: General Discussion Forum
Topic: Personal Independence Payment (PIP) experience
Replies: 2
Views: 1444

Re: Personal Independence Payment (PIP) experience

Hi sky1 Your experience is quite similar to mine. And unfortunately not untypical. We've often said here that the assessment system (and this applies to both PIP and ESA) is skewed against variable conditions like ours. It's little consolation, but a friend of mine with Multiple Sclerosis had exactl...
by longhoc
Sun 16 Mar 2014 8:47 pm
Forum: General Discussion Forum
Topic: Guest Speaker at AGM
Replies: 1
Views: 949

Re: Guest Speaker at AGM

Slide deck as mentioned above in file with this message.
by longhoc
Sat 15 Mar 2014 11:59 am
Forum: General Discussion Forum
Topic: Guest Speaker at AGM
Replies: 1
Views: 949

Guest Speaker at AGM

Talking about issues in research for eye diseases in general and how keratoconus has similarities -- and differences -- to other conditions.

Will try and get hold of the slide pack to post here !

Go to advanced search