UK Keratoconus Self-Help and Support Association

does it normally happen so quickly? It varies from person to person, and even then it goes through fast and slow spurts. he has been referred to get hard contacts , will these prevent anymore long term issues Hard contacts should help him see normally. But they aren't a treatment in themselves. (On...

Wow, I've got to admit that my first thought is that you should find less cowardly people to date. As far as diseases go, KC is is fairly manageable. While I'm sure she occasionally worries about the long-term stability of my crosslinked KC, on a day to day basis I don't get the impression that my g...

Holcomb C3R isn't that special, I'm afraid. The Holcomb name is just a bit of branding by Dr. Brian Boxer Wachler. What he's offering is simply epi-on CXL. And as you probably know, CXL doesn't cure keratoconus, though it seems to stop the progression. It also seems to work better when the epitheliu...

Thanks Lynn - Andrew and I were in agreement, however. I think you've confused me with Mousework. I didn't intend to start an argument. I just wanted to make clear to Carol that there aren't different "types" of KC, as such. One of her replies in the original thread, where she said "I...

Exactly - thanks Andrew.

You're missing my point. My concern was that you'd given Carol the impression that there's different types of KC - aggressive and non-aggressive. There isn't. There's just KC, which can progress at different rates and is difficult to predict. Longhoc - I do feel we've scared Carol off with the CXL a...

Also, Carol, just to clear up what's been said about "aggressive keratoconus" - there's no official diagnosis as such. The rate at which the disease progresses can vary from person to person, year to year and month to month. Basically, they can measure the rate of your son's progression ov...

CXL isn't a magic bullet, by any means, and I don't think anyone here is presenting it as such. But on balance I think it's the sensible option for a newly diagnosed person wanting to maximise their chances of avoiding a life in lenses - which bring with them costs, limited wear time, and varying le...

Funnily enough, I'm sure I've read somewhere that using a bandage contact can slightly delay healing and increase the chance of a permanent haze (though not by much). Most doctors would still do it in order to avoid infection, though. Have you been able to find out your corneal thickness before the ...

I'm surprised you weren't better informed by the clinic/hospital. Never be afraid to ask doctors these things.

I'm afraid your contact might be out for a while, but really it all depends on what your doctor says.