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UK Keratoconus Self Help and Support Association

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KC Group Newsletter

Spring 2004


Scottish Support Group

Eight people attended the first meeting of the Scottish Group in November last year — this was a very encouraging start. Participants shared a wide range of experiences. This raised quite a few issues about the care and treatment of people with keratoconus in Scotland. There is a lot to discuss and address at future meetings, particularly the future of the Scottish Group. The Group looks forward to future meetings with greater numbers.

The next meeting of the Scottish Group is on Saturday 21st February 2004 at 2pm in the Chaplaincy Centre at Strathclyde University, John Street, Glasgow (near George Square) Contact Elizabeth Mair for details by email: emair@supanet.com or telephone 01355 263438

West Midlands Group

The next meeting of the West Mids Group will be on Saturday 24th January 2004 at 11am in the Birmingham Eye Centre, Dudley Road, Birmingham. This will be a question and answer session with a Senior Optometrist from the hospital. Please give your questions in advance of the meeting to Marian Bargery, the West Mids organiser on 01746 767906.

Parents Support Network

Seven parents have joined the Network so far (see details in the previous
). If any other parents are interested in joining, please write to Anne at the group address or email anneklepacz@aol.com giving your name, phone number and the age of your child.

Moorfields NHS Foundation Trust Status

As many of you will know Moorfields Eye Hospital is applying to become an NHS Foundation Trust from April 2004. The hospital is calling on patients, people who have been patients and members of the public to become members and have a greater say in the running of the hospital.

Membership of the hospital is free and provides the opportunity elect, nominate and stand to be a Public Governor of the Trust which will help set the direction and oversee the management of the hospital in the future. It is important that people with keratoconus are represented amongst the membership. Anyone interested in further information can contact the NHS Foundation Trust project team on 020-7566 2496 or via email to foundation@moorfields.nhs.uk.


The Group website continues to go from strength to strength. However, it is important that participants in the discussion group keep entries respectful and reasonable. The committee reserve the right to remove any inappropriate entries and are looking at ways to streamline the forum within the website.

Gift Aid

Thanks to all those who have returned gift aid forms. Anyone needing a new form please contact the Group.

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