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UK Keratoconus Self Help and Support Association

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KC Group Newsletter

Autumn 2003

News

Parents Network

One of the ideas to come out of our recent conference was that we should set up a support network of parents who have children with keratoconus. Parents could then get support from others in a similar situation, pass on their experiences of dealing with schools, education authorities, career decisions or simply with dealing with finding out their youngster has this condition that no one has ever heard of.

If you are a parent and would like to be part of this network, please write to Anne (at the group address or by e-mail to anneklepacz@aol.com) giving your name, telephone number (and e-mail address if you have one) and the age of your child. We will then compile a list and distribute it to all members of the network.

Scottish Support Group.

Do you have keratoconus and live in Scotland? Are you interested in being part of a Scottish Keratoconus Group meeting in the Glasgow area, a few times a year? If so contact Elizabeth Mair on 01355 263438 or email emair@supanet.com

Welsh Support Group

Do you have keratoconus and live in the South Wales area? If so contact Nonn Vaughan who is interested in getting people together in South Wales. Contact Nonn on 02920 707747 or email nonnvaughan@hotmail.com

New Information Leaflet for Schools and Colleges

Those of you who attended our conference will know that we have produced a new information leaflet for schools and colleges. This explains what keratoconus is and how it can affect young people, and how teachers and tutors can help to overcome any problems. If you are a parent or student who would find it useful to give a leaflet to the school or college, please write in to request a copy.

Website

The Keratoconus group website has been revamped, have a look at www.keratoconus-group.org.uk. We think it looks even better. All comments welcome. Please direct them to the new webmaster, John Smith at webmaster@keratoconus-group.org.uk

Next London Meeting

The next meeting will be on Saturday 4th October at 11am in the Board Room of Moorfields Eye Hospital (City Road). There will be a guest speaker who will talk about the Disability Discrimination Act and related issues. All welcome. The meeting will end at around 1pm with light refreshments.

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