KC people living in Scotland

Announcements from the Scottish local group

Moderator: Elizabeth Mair

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Elizabeth Mair
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Posts: 120
Joined: Sun 14 Mar 2004 4:56 pm
Keratoconus: Yes, I have KC
Vision: Contact lenses
Location: East Kilbride

Re: KC people living in Scotland

Postby Elizabeth Mair » Mon 01 Nov 2010 8:42 pm

I was hoping that there would be a ticker tape across the top of the web page with the details but this didn't happen.

Here are the details of the next meeting.

The next meeting is on Saturday 20th November at 2pm at Strathclyde University Chaplaincy centre, John Street, Glasgow. (Near Queen Street station and George Square) We have the TV room.

Our speaker is Dr Ashish Agrawal, an Edinburgh Ophthalmologist.

Looking forward to seeing you and others at our next meeting. Please let me know if you are coming to give me an idea of numbers. You can bring a friend or relation with you, if you want.

Can you also send me a PM with your e-mail address and mail details so that I can put you on the Scottish mailing list.

Clayurr
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Posts: 1
Joined: Mon 18 Jan 2016 4:48 pm
Keratoconus: Yes, I have KC
Vision: Other

Re: KC people living in Scotland

Postby Clayurr » Mon 18 Jan 2016 9:04 pm

Hi,
I'm Claire, I'm 30 from Motherwell. I have been diagnosed with KC for about 5 years now.
Have been prescribed a RPG lens since then, that I've found very difficult to use and must admit I just stop wearing it.
I'm being referred to "speak seriously" about a graft since I have such trouble with the lens due to shape and dryness.
Get on fine with my right and and feel like its starting to go but topography hasn't changed in 6 months.

Just wanted to pop in say hi and introduce myself. I've read stories and information this site for a few years now.

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Lia Williams
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Posts: 380
Joined: Thu 16 Feb 2006 5:27 pm
Location: Surrey

Re: KC people living in Scotland

Postby Lia Williams » Mon 18 Jan 2016 10:11 pm

Hi Claire,

Welcome to the forum.

There are lots of different types of lenses for KC these days. In addition to RGPs (and there are lots of different designs for RGPs) there are also specialist soft lenses, mini scleral and scleral lenses so it may be worth asking if there are any other lenses you could try.

Lia

Clayurr
Newbie
Newbie
Posts: 1
Joined: Mon 18 Jan 2016 4:48 pm
Keratoconus: Yes, I have KC
Vision: Other

Re: KC people living in Scotland

Postby Clayurr » Wed 20 Jan 2016 9:14 pm

I have an appointment in Gartnavel next week so I'll ask.
I think it just being one eye doesn't help either

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james mckinlay
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Posts: 211
Joined: Wed 01 Jun 2005 9:49 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and spectacles
Location: cumbernauld just outside glasgow
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Re: KC people living in Scotland

Postby james mckinlay » Wed 20 Jan 2016 10:48 pm

Hi claiurr welcome to the forum good luck with your appointment I've had KC for about 20 years an had grafts I'm both eyes. Hope you can find a solution with a lens for yourself that can make a huge difference to you.

Nick_Planner
Posts: 0
Joined: Thu 26 May 2016 9:02 am
Vision: Spectacles

Re: KC people living in Scotland

Postby Nick_Planner » Thu 26 May 2016 9:29 am

Hi all , I am Nick ,

I am living in Glasgow - I have had (read: known I have) KC for about 9 years now. Originally treated in Dundee , but I am now in the process of transferring to Gartnavel. I have been fairly stable for a year or so and still managing to survive with glasses, but I am having a downward spiral again, which is frustrating.

I am actually trying to find an Opticians in Glasgow at the moment, one that has some experience with KC, I had a good optician , but sadly they have changed their charging structure , which makes it unaffordable now. If anyone has any local suggestions , I would be really grateful for a PM.

Thanks ,
Nick


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